SomnusNooze e-newsletter
News, stories and updates from the world of sleep
Tools for School, Campus, and Beyond
It’s September, and students of all ages – from K-12 through college and beyond – have begun another year of studies or training. But when IH is part of your life, going to school, being on campus, or learning online or in the field, can be... read >
Sailing and Support on the High Seas
All cruises are enjoyable, but imagine a cruise where your fellow passengers also have IH or a related sleep disorder. And everywhere you look, people understand your sleep disorder and how you’re feeling. Then picture yourself surrounded by... read >
In Case You Missed It! – September 2019
As autumn approaches, our schedules quickly fill up! Keep up to date with the news we’ve shared via social media with the sleep disorder community in this month’s “In Case You Missed It!” So don’t worry if you’ve missed anything – we’ve... read >
Our Struggle for Prescription Drug Coverage – 2019 Survey Results
Did you know? Coverage and cost barriers prevent 40% of people with IH from taking the medication prescribed by the doctor. And almost 72% of people with IH have had their prescribed medications initially denied by their insurance company. Your responses... read >
Self-Advocacy Tips for People with IH and Related Disorders
How can you receive your best care from your healthcare providers? How do you negotiate for accommodations or benefits? We have the answers! The HF is pleased to announce the release of its new patient resource brochure: Self-Advocacy Tips for People with... read >
Study Reveals “Default-Mode Network” Is Different in People Who Have Idiopathic Hypersomnia
Have you ever wondered whether your cognition and memory are affected by your idiopathic hypersomnia (IH)? A new study reveals the answer is “YES.” In a recent study by HF MAB member Dr. Thien Thanh Dang-Vu and his colleagues, neuroimaging... read >
Ask the Doctor: IH, CFS and Fibromyalgia – How Do They Differ?
What’s the difference between chronic fatigue syndrome (CFS) and idiopathic hypersomnia (IH)? How do they differ from fibromyalgia? And how many people with IH also have CFS or fibromyalgia? A medical expert explains! We are very pleased to have Lynn... read >
In Case You Missed It! – August 2019
It’s summer and we know you’re busy! Keep up to date with the news we’ve shared via social media with the sleep disorder community in this month’s “In Case You Missed It!” So don’t worry if you’ve missed anything – we’ve got you... read >
Please Tell Us Your Prescription Drug Story!
Ever had problems getting your insurance company to pay for your prescription medicines? Or ever had problems paying for your prescriptions? We’ve heard enough anecdotal stories to know that insurance coverage and the cost of prescription drugs can be a... read >
Ask the Doctor: Can Jet Lag Be Reduced in People with IH?
Can the effects of jet lag be reduced in people with IH? We are very honored to have Thanh Dang-Vu, MD, PhD, a neurologist at Concordia University in Montreal, and a distinguished member of our Medical Advisory Board, answer this question. QUESTION: Are... read >