SomnusNooze e-newsletter
News, stories and updates from the world of sleep
U.S. Research Budget Advocacy Successes
Good news! The U.S. 2020 budget is passed, and research funding received strong support from our legislators. The highlight of the medical research budget is $41.7 billion for NIH. Advocates from the Hypersomnia Foundation and from hundreds of other... read >
Ask the Doctor: Is There a Link Between Albinism and Idiopathic Hypersomnia (IH)?
Is there a link between albinism and idiopathic hypersomnia (IH)? Are GABAA receptor responses involved in both albinism and IH? How have these responses been measured in scientific studies and what are the differences in the mechanisms? We are pleased to... read >
In Case You Missed It! – January 2020
Happy New Year! Let’s start 2020 by being well informed! Get up to date with the news we’ve shared via social media in the latest “In Case You Missed It!” TAKE A 10-MIN SURVEY AND HELP NORD LEARN MORE ABOUT IH! The National Organization... read >
HF’s “HINT” Test for Identifying Possible Sleep Disorders
Have you heard about the HF’s “HINT” test yet? It’s a quick four-question screening test, to help school professionals, primary care providers, and others identify people who might have a sleep disorder and thus need to see a sleep medicine expert... read >
ICYMI! Events Edition: Get the Scoop on HF’s Attendance at Numerous Events This Past Fall
HF had a very busy fall, attending numerous conferences and events. We’re very excited to have been able to expand our efforts to reach more clinicians, researchers, educators, and people affected by idiopathic hypersomnia and related disorders. We... read >
In Case You Missed It! – December 2019
Happy Holidays! As you enjoy the season with family and friends, we’ll keep you up to date with the news we’ve shared via social media in the latest “In Case You Missed It!” DOUBLE YOUR DONATION BY DEC. 31! Our End-of-Year Fundraising... read >
Help Kick Off Our 2019 LET’S GET #BEYONDSLEEPY Fundraising and IH Awareness Campaign
We are excited to kick off our 2019 “Let’s Get #BeyondSleepy!” fundraising and IH awareness campaign! It’s time to print or make your own “Let’s Get #BeyondSleepy!” sign and help spread awareness of IH and the Hypersomnia Foundation. Grab... read >
Ask the Doctor: Can My Treating Physician Set Up an N-of-1 Trial for Me?
What is an N-of-1 trial? What is involved? Can I set up one with my treating physician? We are very honored to have Chad Ruoff, MD, a distinguished member of our Medical Advisory Board and an Adjunct Clinical Assistant Professor at the Stanford Center for... read >
In Case You Missed It! – October/November 2019
The holiday season is upon us and our schedules quickly fill up! Keep up to date with the news we’ve shared via social media with the sleep disorder community since our last “In Case You Missed It!” So don’t worry if you’ve missed anything –... read >
Ask the Doctor: Delayed Sleep Phase Syndrome or Idiopathic Hypersomnia?
What is delayed sleep phase syndrome (DSPS) and how is it diagnosed? Should it be ruled out before a diagnosis of idiopathic hypersomnia (IH) is made? We are very honored to have Thanh Dang-Vu, MD, PhD, a neurologist at Concordia University in Montreal,... read >