SomnusNooze e-newsletter
News, stories and updates from the world of sleep
Autonomic Dysfunction and Idiopathic Hypersomnia Study Produces Results
A recurring theme we see from people with idiopathic hypersomnia is an interest in finding others who share symptoms beyond sleepiness. This helps connect patients with common experiences and researchers on the path to finding causes and new and improved... read >
YOU Can Get Us #BeyondSleepy! Help Us Raise $24,000 by December 31st!
The work of any rare disease organization naturally relies on community support, and this year—more than ever—you can help determine what the Hypersomnia Foundation can accomplish in 2021 by making a donation to HF today. Tony and Bertha Rye have... read >
In Case You Missed It! – December 2020
Happy Holidays! Celebrations may look different this year, so however you plan to enjoy the season, we wish you peace and joy! If you’ve missed any of the latest news we’ve shared via social media, don’t worry! Get up to date with this latest... read >
Differences in Hypersomnia Disorder Symptoms Among African Americans
Do people of different races/ethnicities experience the same hypersomnia symptoms? This is still an open question, but one study found that African Americans with narcolepsy are less likely to have cataplexy, even when hypocretin levels are low. The... read >
Thinking of Requesting Work Accommodations? Your Mood and Confidence Matter
A summary of a refereed journal article was written at the request of the HF Patient Advisory and Advocacy Council (PAAC) because of its relevance to those with hypersomnias. It highlights some of the issues regarding the complex process of requesting... read >
In Case You Missed It! – November 2020
We are thankful to be able to keep in contact with our community through social media, email, and SomnusNooze. If you’ve missed any of the latest news we’ve shared, don’t worry! Get up to date with this latest edition of “In Case You Missed It!”... read >
U.S. Supreme Court Hearing on the Affordable Care Act Scheduled for Nov. 10th
On November 10th, the Supreme Court of the United States will conduct a hearing on a topic of great concern to millions of people with chronic health conditions such as idiopathic hypersomnia and related sleep disorders. The question before the court is... read >
A Call to Action: Racial Disparities in Hypersomnia Disorders
The Hypersomnia Foundation has long felt that welcoming everyone, regardless of ethnicity, gender, religion, or any other demographic, is essential to who we are, and must be incorporated into our efforts to raise awareness and reach undiagnosed patients.... read >
In Case You Missed It! – October 2020
We are grateful to be able to keep in contact with our community through social media, email, and SomnusNooze. If you’ve missed any of the latest news we’ve shared, don’t worry! Get up to date with this latest edition of “In Case You Missed It!”... read >
IH Symptom and Treatment Insights From the HF Patient Registry at CoRDS
Since March 2015, over 2,300 people have joined the HF International Patient Registry at CoRDS. We now have a valuable dataset for researchers to study and a new research paper has just been published: “Disease Symptomatology and Response to Treatment... read >