SomnusNooze e-newsletter
News, stories and updates from the world of sleep
HF Announces Task Force to Focus on Diversity, Equity and Inclusion
The Hypersomnia Foundation announced its Diversity, Equity and Inclusion (DEI) Task Force last week on social media. This group of volunteers and HF Board Members are working to understand and identify the challenges people of diverse backgrounds may... read >
Tips for Supporters of People With Hypersomnias
Having idiopathic hypersomnia (IH) or a related sleep disorder can be incredibly stressful for both person(s) who have a hypersomnia (PWH) and their supporters. We’ve just launched a new web page providing Tips for Supporters, which were developed by... read >
In Case You Missed It! – April 2021
Happy Spring! Let's get up to date with the news we’ve shared via social media with this latest edition of “In Case You Missed It!” REGISTER TODAY: Join us for our first virtual Meet & Greet - “I’m Newly Diagnosed - What Does This... read >
In Case You Missed It! – March 2021
It's been a busy year so far! Let's get up to date with the news we’ve shared via social media with this latest edition of “In Case You Missed It!” NEWLY RELEASED VIDEO: HF’s virtual event “Your Best Self: New Ways of Thinking About... read >
Announcing Our New Webpage—Sleeping/Napping in Your Car Safely
Start talking to someone with a hypersomnia about how hard it can be to stay awake all day, and soon enough we’ll be telling stories about napping in our cars. Many of us have our favorite napping spots and strategies. We also have concerns—are we... read >
Ride With the Sleep/Wake Cyclers to Raise Money for Research
The Hypersomnia Foundation community is forming a bike team, the Sleep/Wake Cyclers, to raise money for research on idiopathic hypersomnia and related sleep disorders. Our inaugural ride will be Saturday, June 12, 2021! We need riders! All ages... read >
In Case You Missed It! – February 2021
Happy February! Let's get up to date with the news we’ve shared via social media with this latest edition of “In Case You Missed It!” CORDS REGISTRY UPDATE: You hold the key to solving this complicated puzzle of rare sleep disorders! NEW HF... read >
New Research Published on Cognitive-Behavioral Therapy for Hypersomnias
While cognitive-behavioral therapy (CBT) has been used extensively to treat many disorders, including insomnia, until now little research has been done to develop similar treatments for idiopathic hypersomnia (IH) and narcolepsy. Dr. Jason Ong, a member... read >
A Message From Diane Powell, Hypersomnia Foundation’s Board Chair/CEO
In the spring of 2020, as the Covid-19 lockdowns began, we at the HF counted ourselves very fortunate that the Foundation has always minimized operating costs by working remotely and relying on a volunteer Board. Still, we lamented cancelling our... read >
In Case You Missed It! – January 2021
Happy New Year! Let’s start 2021 getting up to date with the latest news we’ve shared via social media with this latest edition of “In Case You Missed It!” FREE HF VIRTUAL EVENT: Register today for “Your Best Self: New Ways of Thinking About... read >