SomnusNooze e-newsletter
News, stories and updates from the world of sleep
In Case You Missed It! – August 2021
We hope you are continuing to enjoy the summer! If you’ve missed any of the latest news we’ve shared through our social media, don’t worry! Get up to date with this edition of “In Case You Missed It!” GREAT NEWS: U.S. FDA approves Xywav®... read >
Make an Emergency Anesthesia/Hospitalization Plan Now!
Do you have idiopathic hypersomnia (IH) or a related sleep disorder or do you treat patients with hypersomnias? If so, then it’s very important to prepare in advance for anesthesia, hospitalization, and emergencies. People who have IH may face a unique... read >
Sleep/Wake Cyclers Raise Over $16K for Research!
The 2021 Sleep/Wake Cyclers was the first grassroots fundraising campaign sponsored by the Hypersomnia Foundation designed specifically to raise money for research. Interest in conducting research into the causes of idiopathic hypersomnia and narcolepsy... read >
In Case You Missed It! – July 2021
Summer has arrived as warm weather and sunshine beckons us to enjoy the great outdoors! If you’ve missed any of the latest news we’ve shared through our social media, don’t worry! Get up to date with this edition of “In Case You Missed It!”... read >
Survey for People With IH and Supporters/Caregivers
As part of the I Have IH campaign, Jazz Pharmaceuticals and the Hypersomnia Foundation are seeking the perspectives of people living in the U.S. with idiopathic hypersomnia and their supporters to better understand the true impact and unmet needs for... read >
Anxiety, Depression, and Function in Individuals With Chronic Physical Conditions: A Longitudinal Analysis
Separately identifying and treating anxiety can be helpful for people who have chronic conditions. This is one of the main conclusions of a refereed journal article, which we’ve summarized at the request of the HF Patient Advisory and Advocacy Council... read >
In Case You Missed It! – June 2021
Don’t worry if you’ve missed any of the latest news we’ve shared through our social media. Get up to date with this edition of “In Case You Missed It!” REGISTER NOW: For HF's June Meet-and-Greet and June Medication Access Event! THANK YOU:... read >
Announcing Two New Web Pages—From Parenthood to Birth Control and More!
Are you a parent who has IH or narcolepsy, or are you thinking of becoming one? Do your hypersomnia medications interact with your hormonal birth control or hormone replacement therapy? Are you a healthcare provider caring for people with hypersomnias? If... read >
In Case You Missed It! – May 2021
Spring is in the air! As you venture outside and enjoy the great outdoors, don’t worry if you’ve missed any of the latest news we’ve shared. Get up to date with this edition of “In Case You Missed It!” WELCOME!: Meet new HF Board members -... read >
Announcing New Web Pages on Disability and Health & Prescription Medicine Insurance
Insurance coverage is a major concern for people with chronic disease. Will health insurance appropriately cover doctor appointments, tests and treatments? If insurance doesn’t cover certain prescription medications, how can they be accessed for the... read >