SomnusNooze e-newsletter
News, stories and updates from the world of sleep
Share Your Journey | The Long and Sleepy Road: A Parent’s Perspective
It’s been a long and interesting road. Growing up in the Dakotas, Trevor was an athletic, outgoing, energetic boy. He played soccer and hockey, enjoyed hanging out with his buddies, and was a great student. In retrospect, we noticed a few strange things... read >
The Hypersomnia Foundation’s 501(c)(3) Status Has Been Approved!
The Hypersomnia Foundation received a letter from the Internal Revenue Service stating that we have met all of the requirements to be a charitable organization. That’s right. The IRS has officially approved the Hypersomnia Foundation's 501(c)(3)... read >
The Hypersomnia Foundation Has Submitted Our 501(c)(3)!
The Hypersomnia Foundation Board members have been hard at work! After countless hours of collaborative work, we have finally completed our 501(c)(3) application and submitted it to the IRS for approval. One component of the 501(c)(3) application is... read >
2014 Hypersomnia Conference DVD Set Is Now Available to Order!
On March 8, 2014, the first Hypersomnia Conference was held in Atlanta, Georgia. Featured guest speakers included: David Rye, MD, PhD, Professor of Neurology at Emory University Lynn Marie Trotti, MD, MSc, Assistant Professor of Neurology... read >
Summary of Research into Clarithromycin as a Hypersomnia Treatment
GABA is known to promote sleep and decreased consciousness, and many patients with CNS hypersomnia have been found to have endogenous GABA-A receptor hyper-reactivity. Flumazenil, a known GABA-A antagonist, has been shown to reduce symptoms in these... read >
Idiopathic Hypersomnia Symposium at the World Association of Sleep Medicine Meeting
A symposium entitled, “Idiopathic Hypersomnia: Past, Present and Future,” and co-chaired by Drs. Michel Billiard (Montpellier, France) and Sona Nevsimalova (Charles University, Prague, Czech Republic), took place at the World Association of Sleep... read >
Today Show Features Teenager with KLS
This episode of the Today Show, which originally aired on November 20, 2012, offers a glimpse into the sleep-filled life of Nicole Delien, a 17-year-old with Kleine-Levin syndrome, and provides an interview with the physician who diagnosed her disorder,... read >
Emory Researchers Announce Discovery of Substance That May Be Linked to Excessive Sleeping
In a paper published in the November 21, 2012, edition of Science Translational Medicine, Dr. David Rye and a team of researchers from Emory University announced their discovery of a substance in the cerebrospinal fluid of 32 people with idiopathic... read >
Emory Magazine Features ‘Sleeping Beauty’ Case & Hope for a Cure
Emory Magazine features story of Anna, a 32-year-old attorney, who could do nothing to quench her insatiable need for sleep, even when she slept for 57 hours straight. Follow Anna’s journey for help, which led her to the Emory Healthcare Sleep Program... read >