SomnusNooze e-newsletter
News, stories and updates from the world of sleep
Apply for the Jack & Julie Narcolepsy Scholarship!
Are you a high school senior planning to attend a four-year university and have narcolepsy? Considering applying for the Jack & Julie Narcolepsy Scholarship! Are you a high school senior planning to attend a four-year university and have narcolepsy?... read >
Share Your Journey | Drowning in Sleep
One would think that my mother chose one of those underwater birthing experiences or a birth assisted by dolphins when she had me…since I’ve spent my entire life in or under water. Literally? No, figuratively—living in and under water is my... read >
Register to Attend the 2015 HFRC
Let's kindle the flame! Register to attend the conference today. Socrates once said, "Education is the kindling of a flame, not the filling of a vessel." Sitting in school as a young person, you may remember feeling as if your teachers were the vessels... read >
Can Actigraphy Help to Differentiate People with Narcolepsy from People with Idiopathic Hypersomnia?
Why is this study important? Type 1 narcolepsy (T1N) and idiopathic hypersomnia (IH) are both disorders of central hypersomnolence. Even though the International Classification of Sleep Disorders, third edition, includes a finding of 11 hours of sleep... read >
Awareness: The Key to Unlocking the Mystery of IH
Without awareness, we are lost. Before you knew that idiopathic hypersomnia existed, before you connected your symptoms or those of a loved one with an actual neurologic disorder called IH, you had no awareness. Physicians who have not been... read >
Share Your Journey | Taking a Stand for a Proper Diagnosis
I have always been a person who could not get enough sleep. Regardless of how long I slept—13 or 14 hours a night was commonplace—I still never felt refreshed upon waking. My teenage years were tough. My school attendance record was appalling, but... read >
Hypocretin Level as a Biomarker in KLS
Background Kleine-Levin syndrome (KLS) is a rare disorder in which affected people experience episodes at least once per year during which they sleep for at least 11 hours out of every day (but often for days at a time), eat excessively (megaphagia),... read >
Does Modafinil Improve Sleepiness in People With IH Without Long Sleep Time?
Background In Europe, modafinil used to be available as a treatment for the excessive daytime sleepiness (EDS) associated with idiopathic hypersomnia (IH). However, in 2010, the European Medicines Agency (EMA, the equivalent of the Food and Drug... read >
Submission to the FDA’s Regarding Hypersomnias
On September 24, 2013, the US Food and Drug Administration (FDA) held a public meeting to solicit information on the impact of narcolepsy on affected individuals’ daily lives and the effect of currently available medication on their disease symptoms. A... read >