SomnusNooze e-newsletter
News, stories and updates from the world of sleep
Share the Journey
Coming to terms with having a chronic condition such as idiopathic hypersomnia, Kleine-Levin syndrome, or narcolepsy often involves a long and sometimes convoluted process. Unfortunately, the journey does not end once the correct diagnosis is reached.... read >
University of Michigan Offers Free Sleep Course Online
The University of Michigan, through Coursera, is offering a free online course entitled Sleep: Neurobiology, Medicine, and Society starting on April 6, 2015. Beginning with an overview of the molecular basis of sleep and covering a general review of... read >
New Findings in a Large Well-defined Group of People with KLS
Background Kleine Levin syndrome (KLS) is a neuropsychiatric disease that affects about 1 in a million people. Symptoms include hypersomnia, confusion, derealization, hypersexuality, megaphagia, altered mood, and hallucinations that occur during... read >
HF Offers First HF Conference Scholarship
The Board of Directors of the Hypersomnia Foundation is pleased to announce the First Hypersomnia Foundation Conference Scholarship. This scholarship will cover the conference registration for one person to the Building Our Future Together conference to... read >
Share Your Journey | What Was It I Needed? My Grocery Trip with Brain Fog
It’s the end of the day and the awake drugs I take so that I can function during the day have worn off. I’m super sleepy now, but my husband, who is cooking me dinner, asks me to go to Kroger to buy three items we need. I can handle three items and I... read >
First Industry-Sponsored Clinical Trial of a Treatment for Idiopathic Hypersomnia and Narcolepsy without cataplexy
NeuroTrials, Inc., has begun recruiting people to take part in the testing of a new treatment for idiopathic hypersomnia and narcolepsy without cataplexy. This small phase 1 study will test the safety and efficacy of a drug that is taken by mouth and... read >
Share Your Journey | A Two for One Challenge
Until the summer after I graduated from high school, I had seemingly unlimited energy. A typical day for me would be waking at 5:00 am, attending class until 1:30, and then cramming in homework before heading to marching band or track practice. Often... read >
Dr. David Rye Presents at 2013 Narcolepsy Network
Dr. David Rye's 2013 session at the Narcolepsy Network conference entitled: What's in a Name? Understanding the Origins of the Terminologies for the Family of Hypersomnias. A fascinating examination of semantics and the signs and symptoms of... read >
Parallels Between Progressive Rock and Idiopathic Hypersomnia
Katie Gleason does an excellent job sharing how idiopathic hypersomnia feels to her in a featured essay on stereoembersmagazine.com. I was diagnosed with ADHD before idiopathic hypersomnia, but I suspect the hypersomnia only increases the... read >
How Long Does It Take for Sodium Oxybate to Work?
Background According to the Narcolepsy Network, although it affects more than 200,000 people in the U.S., narcolepsy is estimated to be undiagnosed or untreated in 75% of people with the disorder. This lack of recognition leads to delays in effective... read >