SomnusNooze e-newsletter
News, stories and updates from the world of sleep
New Flumazenil Shortage Information Available
We have continued to monitor the flumazenil shortage situation and now have some updates for you. We are offering this to you for information purposes only. To the best of our knowledge, and until now, only one pharmacy in the United States, Pavilion... read >
It’s a Fine Line Between Type 2 Narcolepsy and Idiopathic Hypersomnia… and It’s Getting Even Finer
Researchers have provided more evidence that narcolepsy without cataplexy (Nw/oC ) and idiopathic hypersomnia (IH) without long sleep time (LST) look more alike on testing than do narcolepsy with cataplexy (NwC) and Nw/oC. This research was completed... read >
Emory Team to Receive Grant to More Fully Understand and Release the Parking Brake!
The Hypersomnia Foundation congratulates Dr. David Rye and the team at Emory University on their receipt of a 4-year award for nearly $3 million in total costs from the National Institute of Neurological Disorders and Stroke to study the biologic basis of... read >
HF Report on Delays in Filling Flumazenil Prescriptions
The Hypersomnia Foundation has become aware that Pavilion Pharmacy, a provider of flumazenil cream and sublingual lozenges in the United States, has been unable to fill new or renewing prescriptions for this drug. We have contacted the company owner and... read >
Continuing to Unravel the Genetic Mystery of Narcolepsy
Dr. Toyoda and his colleagues in Japan have described new susceptibility genes — CCR1 and CCR3 — for type 1 narcolepsy. Background Type 1 narcolepsy (also called narcolepsy with cataplexy) is believed to be the result of a combination of genetic and... read >
Share Your Journey | I’m Not Lazy
I guess my story is a lot like other people’s stories. . .or at least I hope it's a lot like theirs. My symptoms started when I was about 14 years old. Actually, except for my early childhood, I don't really remember being awake a lot. In school, I... read >
U.S. News & World Report Features Struggles of Idiopathic Hypersomnia
An article published on May 11, 2015, in U.S. News & World Report highlights the struggles of two women whose lives are challenged by idiopathic hypersomnia. They are, as reporter Anna Miller explains, “at the sandman's beck and call.” One... read >
Hypersomnia Supporter Appreciation Day: Honoring Loved Ones & Celebrating Community
Happy Idiopathic Hypersomnia Supporter Appreciation Day! We join our Facebook community on May 1st and celebrate this special day by honoring those who make the world better and make life possible for those with IH. Sometimes we just need an ear to... read >
Deadline for the 2015 HFC Scholarship Approaching!
The deadline (April 25, 2015) is fast approaching to apply for the 2015 Hypersomnia Conference scholarship, but your chances of being selected have significantly improved. Over the past week, several anonymous donors have paid for additional... read >
CNN Features Hypersomnia in Three Part Series
Set your DVRs, check it out live, or catch a sneak peak, but don’t miss this program on sleep and idiopathic hypersomnia on CNN! Dr. Sanjay Gupta not only undergoes a Multiple Sleep Latency Test at Emory Sleep Lab, but also discusses idiopathic... read >