SomnusNooze e-newsletter
News, stories and updates from the world of sleep
Together, We Can Solve the Puzzle of Hypersomnia
Wouldn't you like to do something to help solve the puzzle of hypersomnia? Well you can! Sharing information about your symptoms, your previous treatments, and your diagnostic journey as part of the Hypersomnia Registry at CoRDS (Coordination of... read >
Flumazenil for the Treatment of Refractory Hypersomnolence
Background In 2012, researchers from Emory University published a paper on their finding of a substance that increases the effect of GABA in people with central disorders of hypersomnolence, particularly idiopathic hypersomnia. In that paper, they... read >
The Blight on My Daughter’s Life
I gave birth to my daughter at 7:28 pm after 33 hours of labor. I was worn out, so I relinquished my baby to the care of the nurses within a couple hours to get some sleep. I didn’t see Cait again till 6:00 am. And, for the first year and a half of her... read >
Hypersomnia Research-Where We Are and Where We Are Headed
During the presentation by David Rye, MD, PhD, titled “What are the latest developments in research on idiopathic hypersomnia?” at the Beyond Sleepy in the Mile-High City Hypersomnia Conference, he pointed out that, while on the one hand without a... read >
Idiopathic Hypersomnia – A Turtle Going Uphill Through Molasses in January
Share the Journey Stories Words escape me. I am a reader, a writer, and a highly educated woman with multiple degrees. Eloquence is high on my list of valued traits. Communication is one of my strengths, and something I’ve always been commended for.... read >
Sleep Disorders and Social Security Disability – What You Need to Know
Social Security Disability Series: Part 2 By Anjel Burgess, JD For Part 1 in this series, click HERE. For Ms. Burgess' presentation at our 2018 conference, click HERE. Jennie has been fortunate enough to secure her short-term disability benefits. She... read >
Midyear Recap
Can you believe that 2016 is almost half over? It’s been a very busy year at the Hypersomnia Foundation, where volunteers have been hard at work establishing new programs and bringing you the latest information on the central disorders of... read >
Solving the Puzzle of Hypersomnia One Piece at a Time
The Hypersomnia Foundation Board of Directors is thrilled to announce the launch of the Hypersomnia Foundation’s Registry at CoRDS (Coordination of Rare Diseases at Sanford). Whether you have idiopathic hypersomnia, Kleine-Levin syndrome or narcolepsy... read >
Mark Your Calendar, Set Your Alarm, and Register Today
June 12, 2016, is the date. Noon Mountain Daylight Time (MDT) is the time. And, as promised, registration for the Livestream feed of Beyond Sleepy in the Mile High City: a Hypersomnia Foundation Regional Conference is now open. Thanks to the generous... read >
Sleep Disorders and Your Job – What to Do When the Writing’s on the Wall
Social Security Disability Series: Part 1 By Anjel Burgess, JD For Part 2 in this series, click HERE. For Ms. Burgess' presentation at our 2018 conference, click HERE. Jennie is a 40-year-old single mother of two children who has been working for 10... read >