SomnusNooze e-newsletter
News, stories and updates from the world of sleep
Dear Abby Misses the Mark on IH
A “Dear Abby” advice column was recently forwarded to us by Noelle, a member of the hypersomnia community. In a letter to Abby, a mother in New Jersey asked what to do about her teenaged son’s complete inability to get himself up for school in the... read >
HF Board Member Featured as Guest on Top Docs Radio!
Hypersomnia Foundation’s Catherine Page-Rye will be live on Top Docs Radio, Tuesday April 18 at noon EDT. If you missed the live show, you can download it here. Cat aims to promote awareness and better understanding of idiopathic hypersomnia (IH) as... read >
World Sleep Day: Battling the Symptoms of Idiopathic Hypersomnia
World Sleep Day, an annual event, is a call to action by delegates from around the world to raise awareness about the many burdens of sleep problems and their prevention and management. This year WSD falls on Friday, March 17,... read >
Article Summary: Khan Z, Trotti LM. “Central Disorders of Hypersomnolence: Focus on the Narcolepsies and Idiopathic Hypersomnia.”
This article reviews three central disorders of hypersomnolence (CDH), which include narcolepsy type 1, narcolepsy type 2, and idiopathic hypersomnia. The main symptom patients experience in all three of these disorders is... read >
Rare Disease Day: Research Brings Hope – My CoRDS Experience
On February 28, 2017, the Hypersomnia Foundation (HF) joins with all those participating in Rare Disease Day supporting the slogan, “Research Brings Hope to People Living with a Rare Disease.” On Rare Disease Day, through social media and our... read >
A Service Dog Can Do That?
Service Dogs – Different Types and What They Do Many people are surprised to learn there are more than a dozen different specializations for service dogs. There are diabetic alert dogs, severe allergy alert dogs, visual assistance dogs, hearing dogs... read >
2017 #BeyondSleepy in Boston
Hypersomnia Foundation Regional Conference on June 4th The Hypersomnia Foundation (HF) board is finalizing the program for its 2017 Boston Regional Conference. We will provide Eventbrite registration details in the near future via Facebook, Twitter and... read >
Ask the Doctor: Narcolepsy vs Idiopathic Hypersomnia
Narcolepsy vs Idiopathic Hypersomnia: What's the Difference? My 9-year-old son recently was diagnosed with IH but can't exclude narcolepsy. We got a second opinion and the doctor agreed. I don't understand why they don't have a definitive answer. The... read >
Celebrate with the Hypersomnia Foundation
Celebrate with HF: Three Years of Awareness, Education, and Research A message from the new CEO/Chair: The Hypersomnia Foundation had a great year in 2016! As I look over the list of the year’s accomplishments, I am keenly aware of the tireless... read >