SomnusNooze e-newsletter
News, stories and updates from the world of sleep
Harvard’s Dr. Kiran Maski Joins Our MAB
The Hypersomnia Foundation is thrilled to announce that Kiran Maski, MD, MPH, a distinguished pediatric sleep specialist, has joined our Medical Advisory Board (MAB). Dr. Maski is an assistant professor of neurology at Harvard Medical School, and a child... read >
Idiopathic Hypersomnia Featured in Self Magazine!
The Hypersomnia Foundation's own Board Member, Catherine Page-Rye, and Medical Advisory Board Chair, Dr. Lynn Marie Trotti, were interviewed for this December 2017 article, which describes what it is like to live with idiopathic hypersomnia. Read the... read >
Double Your Gift to HF with Our Year-End Matching Challenge!
Here’s a wonderful way to end the year and double your gift to the Hypersomnia Foundation! During the month of December 2017, our longtime supporters Bertha and Tony Rye have generously offered to match all donations up to $10,000. So please consider... read >
Umecrine Cognition Expands Study of New Medicine GR3027 to IH
Everyone here at the Hypersomnia Foundation is always excited when researchers and pharmaceutical companies include IH as a part of their clinical trials and research. With each clinical trial and research project, we grow ever closer to more effective... read >
Board Member Amy Haraden Speaks About Living with IH at SLEEP2 Conference
On June 3, 2017, Board Member Amy Haraden participated in a Patient Panel at the SLEEP2 (PCORI) Conference organized by Project Sleep. SLEEP2 is a project co-led by the University of Arizona, the Sleep Research Network, and Project Sleep and is funded... read >
Show Your Support!
The Hypersomnia Foundation has a lot going on right now, and there are many ways to show your support! Donate Our 2017 Fall Fundraiser is underway. With your donations, HF has been able to launch and maintain a patient registry to aid research; hold... read >
Save the Date 2018 HF Conference
Save the dates for our 2018 Conference! June 2-3, 2018 in Baltimore, Maryland. #HFconf #BeyondSleepy read >
“Ask the Doctor” Discontinued
Dear Reader: On behalf of the Hypersomnia Foundation, we would like to first thank you for your submissions to the “Ask the Doctor” column. It is with regret that we also extend an apology for not yet responding to all the submitted questions.... read >
Need Surgery, But Have IH?
We’ve summarized a journal article that addresses some anesthesia considerations for patients with idiopathic hypersomnia. If you need to have surgery of any kind, you may want to share this information with your healthcare providers. Summary of:... read >
Introducing the Updated HF Brochure!
In 2014, the Hypersomnia Foundation (HF) published a brochure written for people with idiopathic hypersomnia and their supporters. Since that time, over 3,500 brochures have been sent to physicians’ offices, at their request, for distribution. We have... read >