SomnusNooze e-newsletter
News, stories and updates from the world of sleep
In Case You Missed It! – September 2018
In case you missed it, here are highlights from our social media to keep you up-to-date! From HF board members raising hypersomnia awareness at the Myotonic Dystrophy Foundation Conference to an insightful commentary from a science writer living with... read >
Introducing Our New Medical Alert Card for IH Patients!
The Hypersomnia Foundation is pleased to announce that we have created a Medical Alert Card, designed expressly for people with idiopathic hypersomnia (IH). The card is FREE and can be downloaded from our website HERE. Our Medical Alert Card is... read >
Canadian Neurologist Dr. Thanh Dang-Vu Joins Our MAB
The Hypersomnia Foundation is very pleased to announce that Thanh Dang-Vu, MD, PhD, a distinguished neurologist from Canada, has joined our Medical Advisory Board (MAB). Dr. Dang-Vu is currently an Associate Professor at Concordia University in Montreal,... read >
College-bound? Get Our Ed Essentials Guide, Full of Tips from Students with IH!
Students across the country are preparing to head off to college soon. But regardless of whether you are a student preparing to go to college for the first time, a student returning to your campus (or transferring to a new school), a student taking online... read >
In Case You Missed It! – August 2018
This new series highlights topics relating to sleep disorders that have been in the news and/or in our recent social media posts. Check here each month to make sure that you are up-to-date on the news relating to idiopathic hypersomnia and related sleep... read >
Announcing Our Updated Research Studies Web Page!
We’re pleased to announce that we have updated our Research Studies web page (formerly titled Clinical Trials). By CLICKING HERE, you can see our latest information on ongoing research studies about idiopathic hypersomnia (IH) and related disorders,... read >
The Hypersomnia Foundation (HF) Conference in Baltimore Last Month Was an Amazing Experience!
Last month’s HF Conference in Baltimore was an amazing experience, for both attendees and presenters. The numbers speak for themselves: Almost 200 persons in attendance (including patients, their families and supporters, medical professionals and... read >
IH – The Thief of My Youth
I was 15 years old when my life was turned upside down. In my early years, I was a girl who played sports, participated in school activities, maintained good grades, and was friends with just about everyone. However, during the summer of my sophomore year... read >
In Case You Missed It! – July 2018
This month, we begin a new SomnusNooze series entitled “In Case You Missed It!” This series will highlight topics relating to sleep disorders that have been in the news and/or in our recent social media posts. Check here each month to make sure that... read >
Hypersomnia Foundation’s Awareness Activities in Baltimore a Great Success!
The Hypersomnia Foundation (HF) and its Board have just completed a week of very successful events in Baltimore to raise awareness of idiopathic hypersomnia (IH). First, the HF held its #BeyondSleepy Conference on June 2-3, attracting nearly 200... read >