SomnusNooze e-newsletter
News, stories and updates from the world of sleep
Video Release! Women’s Health and the Effects of Hypersomnias
MAY 2021 IMPORTANT ADDENDUM: This article and its associated video presentation is now outdated. In May 2021, Hypersomnia Foundation released updated content based on this presentation. Please see the following links for updated information:... read >
Excerpts from the “Advice from Campus” Guide
We are pleased to release three uniquely written excerpts from our Advice from Campus guide in the Education Essentials Guidebook. All of these excerpts navigate the student with idiopathic hypersomnia (IH) through some inevitable challenges on a campus.... read >
Ask the Doctor: How Prevalent Is Narcolepsy in Children with ADHD? What Causes Complex Sleep Apnea?
Do children with ADHD have a higher risk for narcolepsy? Could complex sleep apnea be related to problems with the vagus nerve? A medical expert answers! We are delighted to have Dr. Kiran Maski of Harvard Medical School, a renowned expert in pediatric... read >
In Case You Missed It! – April 2019
Keep up to date with all the news we’ve shared with the sleep disorder community in this month’s “In Case You Missed It!” TAKE ACTION by clicking to support NORD’s advocacy. Read about a runner with IH competing in the upcoming Boston Marathon.... read >
Research Studies Need YOU!
Have IH, narcolepsy, or a related sleep disorder? Ever wonder how you can help in the search for better treatments or even a cure? Now is your chance – a number of research studies are currently seeking participants who have IH, narcolepsy, or excessive... read >
Free Resources from the Hypersomnia Foundation!
Need information relating to your IH? Love things that are FREE? Our Hypersomnia Foundation website is full of FREE resources for individuals with IH and related sleep disorders (and their loved ones). Our website offers an “IH Standard... read >
NORD Guide for Making Your Health Insurance Work for You!
Are you satisfied with your health insurance benefits? Or are you pulling your hair out over complicated policy language, undecipherable diagnostic codes, and denials of coverage for your IH treatments? It is difficult enough to have a rare disease such... read >
An (Almost) Excuse for Freaking Out Every Morning
In this Personal Journey story, a 19-year-old woman shares how it really feels to have IH. Her feelings run the gamut – from frustration to anger to fear to depression to sorrow. Even with a diagnosis of IH, she still feels the need to apologize for... read >
In Case You Missed It! – March 2019
Happy March! Did you know that March is Women’s History Month? While you are celebrating all the amazing women throughout history this entire month, don’t forget that there are also lots of other fun (and offbeat) celebrations in March, including... read >
Ask the Doctor: Is IH Genetic? Do IH Symptoms Ever Remit?
Although the Hypersomnia Foundation is not currently accepting new submissions for its Ask the Doctor series, we are working to answer previously submitted questions that are of general interest to our hypersomnia community. Today we have Dr. Ana... read >