SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Treatments
Getting Support from a Mental Health Professional
by Diane Powell, LCSW People with idiopathic hypersomnia and related disorders live with the constant challenges of having a chronic condition that is not well known and is poorly understood even by researchers. Every day, there are... read >
A Pilot Study of tDCS Looks Promising for the Treatment of IH
A Pilot Study of tDCS Looks Promising for the Treatment of Idiopathic Hypersomnia Background Idiopathic hypersomnia (IH) can severely impact affected individuals’ family, employment, education, and leisure activities. And because there are no... read >
Communicating with Your New Doctor About Your (or Your Child’s) Rare Disorder
Note: In this article, the word “you” will be used to mean both you and your child. You will need different kinds of doctors to help you with your rare disease. Specialists will know the most about your disease and which specific treatments are best.... read >
What’s New in the Diagnosis and Treatment of Hypersomnia in 2016?
Rather than writing our own article for this week’s edition of SomnusNooze, we are bringing you information from Dr. David Cunnington in Melbourne, Australia. Dr. Cunnington has agreed to share with us a recent post from his website (sleephub.com.au)... read >
Flumazenil for the Treatment of Refractory Hypersomnolence
Background In 2012, researchers from Emory University published a paper on their finding of a substance that increases the effect of GABA in people with central disorders of hypersomnolence, particularly idiopathic hypersomnia. In that paper, they... read >
Strategies for Coping with the Side Effects of Medications
IMPORTANT NOTE: If you think you may be experiencing side effects from your treatments, be sure to discuss these with your healthcare providers, who can help you consider other treatment options. By TONI BERNHARD, JD Many of us who suffer from... read >
The Cost of Prescription Medications Has Risen by More Than 20% in the Past Year
See our Disability and Insurance web page for updated content—to learn more about finding insurance and filing claims successfully in order to access the treatments you need at an affordable price or set up a disability income stream if you can no... read >
Summary of Rationale Behind and Research Studies into L-carnitine as a Treatment for Narcolepsy
Background In this 2013 study published in PLoS One, the researchers Miyagawa et al hypothesized that L-carnitine supplementation might help improve narcolepsy symptoms by increasing β-fatty-acid oxidation. Fatty acids are a major energy source for... read >
EMA Recommends Approval of Pitolisant for the Treatment of Narcolepsy
On November 20, 2015, the European Medicine Agency’s (EMA) Committee for Medicinal Products for Human Use (CHMP) recommended that Bioprojet Pharma's drug pitolisant (Wakix) be approved for the treatment of narcolepsy with or without cataplexy. In... read >
A Comparison of Sodium Oxybate in the Treatment of Idiopathic Hypersomnia and Narcolepsy Type 1
Background Sodium oxybate (SXB) is a drug sold as Xyrem in the United States by Jazz Pharmaceuticals, in Europe by UCB Pharma, and in Canada by Valeant Pharmaceuticals. It is approved in the United States in adults for the treatment of excessive daytime... read >