SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Take action!
You Are Amazing!
Once again, our incredible hypersomnia family has come together to support each other in a most amazing way. As you know, several anonymous donors challenged our community to enroll in the Hypersomnia Foundation Registry at CoRDS during the month of... read >
Communicating with Your New Doctor About Your (or Your Child’s) Rare Disorder
Note: In this article, the word “you” will be used to mean both you and your child. You will need different kinds of doctors to help you with your rare disease. Specialists will know the most about your disease and which specific treatments are best.... read >
Together We WILL Solve the Puzzle of Hypersomnia
Why did the Hypersomnia Foundation Board of Directors and volunteers work for more than two years with physicians and researchers to create a hypersomnia-specific registry? Because, as David Meeker, President and CEO of Genzyme, has said,... read >
Complete the CoRDS Registry to Raise Funds for Research!
Hypersomnia Australia is designating September 5- 11th as Idiopathic Hypersomnia Awareness Week. Their theme this year is Improving Quality of Life. We can’t think of a better way to improve the lives of people with Idiopathic Hypersomnia than to... read >
Together, We Can Solve the Puzzle of Hypersomnia
Wouldn't you like to do something to help solve the puzzle of hypersomnia? Well you can! Sharing information about your symptoms, your previous treatments, and your diagnostic journey as part of the Hypersomnia Registry at CoRDS (Coordination of... read >
Solving the Puzzle of Hypersomnia One Piece at a Time
The Hypersomnia Foundation Board of Directors is thrilled to announce the launch of the Hypersomnia Foundation’s Registry at CoRDS (Coordination of Rare Diseases at Sanford). Whether you have idiopathic hypersomnia, Kleine-Levin syndrome or narcolepsy... read >
Mark Your Calendar, Set Your Alarm, and Register Today
June 12, 2016, is the date. Noon Mountain Daylight Time (MDT) is the time. And, as promised, registration for the Livestream feed of Beyond Sleepy in the Mile High City: a Hypersomnia Foundation Regional Conference is now open. Thanks to the generous... read >
Act Today and Let Your Voice Be Heard
Very recently, the Hypersomnia Foundation became aware of an opportunity to help shape the future of sleep research. The National Institutes of Health, the primary source of funding for medical research in the United States, has issued a Request... read >
Conference Details – Beyond Sleepy in the Mile High City!
If you haven’t made your plans yet to attend the Hypersomnia Foundation’s regional conference in Denver—Beyond Sleepy in the Mile High City—you might want to do so today. Tickets are selling fast and seating is limited. The big event is in less... read >
Put Your Napping Skills to Work and Win Prizes!
Note: Entry period for this contenst ended May 1, 2016. If, like me, you have hypersomnia, I’m sure you’re no stranger to napping wherever it’s convenient: in class, at a stoplight, under your desk, in a library, in a corner at the bookshop, at a... read >