SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Take action!
Show Your Support!
The Hypersomnia Foundation has a lot going on right now, and there are many ways to show your support! Donate Our 2017 Fall Fundraiser is underway. With your donations, HF has been able to launch and maintain a patient registry to aid research; hold... read >
Save the Date 2018 HF Conference
Save the dates for our 2018 Conference! June 2-3, 2018 in Baltimore, Maryland. #HFconf #BeyondSleepy read >
Introducing the Updated HF Brochure!
In 2014, the Hypersomnia Foundation (HF) published a brochure written for people with idiopathic hypersomnia and their supporters. Since that time, over 3,500 brochures have been sent to physicians’ offices, at their request, for distribution. We have... read >
YOU Power the Engine for #BeyondSleepy
Medical Advisory Board (MAB) and Scientific Advisory Board (SAB) volunteers: The Hypersomnia Foundation’s Medical and Scientific Advisory Boards, otherwise known as the MAB and SAB, are comprised of world experts in their fields of sleep research and... read >
Share Your Journey
Your Story Matters Everyone has a story to tell that will resonate, educate or motivate. Coming to terms with having a rare, chronic condition can feel like a long and sometimes lonely process. Knowing others have walked a similar road as you,... read >
Arise Clinical Trial
CLINICAL TRIAL ENROLLING PATIENTS WITH IDIOPATHIC HYPERSOMNIA AND NARCOLEPSY TYPE 2 Balance Therapeutics is evaluating an investigational new drug BTD-001, to treat excessive daytime sleepiness in individuals diagnosed with idiopathic hypersomnia... read >
Research Is Critical and Ongoing
YOU COUNT! Time to update CoRDS information! Please make time to log into the CoRDS online portal and keep all of your information up to date. Not only is it important to keep your information up to date in case researchers would like CoRDS to contact... read >
Let Sleep Researchers Know What’s Important to YOU
HF urges the entire hypersomnia community, including people with IH, people with narcolepsy, all supporters and healthcare professionals, to take a short survey prepared by Project Sleep in partnership with the University of Arizona "to capture... read >
Rare Disease Day: Research Brings Hope – My CoRDS Experience
On February 28, 2017, the Hypersomnia Foundation (HF) joins with all those participating in Rare Disease Day supporting the slogan, “Research Brings Hope to People Living with a Rare Disease.” On Rare Disease Day, through social media and our... read >
Investing in the Future of People with Idiopathic Hypersomnia
An insatiable need to sleep that is not eased by a full night’s slumber is one of the debilitating effects of a rare, chronic neurological disorder called idiopathic hypersomnia (IH). In a society where feeling tired is the norm, IH is often... read >