SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Take action!
In Case You Missed It! – October/November 2019
The holiday season is upon us and our schedules quickly fill up! Keep up to date with the news we’ve shared via social media with the sleep disorder community since our last “In Case You Missed It!” So don’t worry if you’ve missed anything –... read >
Sailing and Support on the High Seas
All cruises are enjoyable, but imagine a cruise where your fellow passengers also have IH or a related sleep disorder. And everywhere you look, people understand your sleep disorder and how you’re feeling. Then picture yourself surrounded by... read >
Our Struggle for Prescription Drug Coverage – 2019 Survey Results
Did you know? Coverage and cost barriers prevent 40% of people with IH from taking the medication prescribed by the doctor. And almost 72% of people with IH have had their prescribed medications initially denied by their insurance company. Your responses... read >
Self-Advocacy Tips for People with IH and Related Disorders
How can you receive your best care from your healthcare providers? How do you negotiate for accommodations or benefits? We have the answers! The HF is pleased to announce the release of its new patient resource brochure: Self-Advocacy Tips for People with... read >
Please Tell Us Your Prescription Drug Story!
Ever had problems getting your insurance company to pay for your prescription medicines? Or ever had problems paying for your prescriptions? We’ve heard enough anecdotal stories to know that insurance coverage and the cost of prescription drugs can be a... read >
In Case You Missed It! – July 2019
Keep up to date with the news we’ve shared via social media in this month’s “In Case You Missed It!” URGENT: Health authorities warn that modafinil may cause fetal harm. CONGRATULATIONS: Dr. Caroline Maness of Emory University is the first... read >
HF Legislative Advocate Rebecca King Steps Up for Medication Access and Affordability Laws
The Hypersomnia Foundation has named Rebecca King, who is both a person with IH and an HF volunteer, as a Legislative Advocate. In this role, Rebecca will be leading HF efforts to assess the legislative landscape, select the issues and bills with the... read >
In Case You Missed It! – May 2019
In this month’s “In Case You Missed It!”, keep up to date with news we’ve shared with the sleep disorder community via social media this past month. So don’t worry if you’ve missed anything – we’ve got you covered! CHECK OUT... read >
In Case You Missed It! – April 2019
Keep up to date with all the news we’ve shared with the sleep disorder community in this month’s “In Case You Missed It!” TAKE ACTION by clicking to support NORD’s advocacy. Read about a runner with IH competing in the upcoming Boston Marathon.... read >
Research Studies Need YOU!
Have IH, narcolepsy, or a related sleep disorder? Ever wonder how you can help in the search for better treatments or even a cure? Now is your chance – a number of research studies are currently seeking participants who have IH, narcolepsy, or excessive... read >