SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Current actions
The Hypersomnia Foundation Is Excited to Fund a $1,000 Scholarship!
Partnering for the first time with Project Sleep’s Jack and Julie Narcolepsy Scholarship program, HF is providing funds to support a $1000 scholarship. High school seniors diagnosed with idiopathic hypersomnia and planning to attend a... read >
Why Monthly Giving Is Good for Donors (and the Nonprofits They Support)
It seems like everything these days is by subscription model – just think Netflix or Hulu. Why? It’s because technology has made such automatic monthly payment systems easier than ever before. It’s the same in the nonprofit world. New technology... read >
Introducing the Updated HF Brochure!
In 2014, the Hypersomnia Foundation (HF) published a brochure written for people with idiopathic hypersomnia and their supporters. Since that time, over 3,500 brochures have been sent to physicians’ offices, at their request, for distribution. We have... read >
Share Your Journey
Your Story Matters Everyone has a story to tell that will resonate, educate or motivate. Coming to terms with having a rare, chronic condition can feel like a long and sometimes lonely process. Knowing others have walked a similar road as you,... read >
Communicating with Your New Doctor About Your (or Your Child’s) Rare Disorder
Note: In this article, the word “you” will be used to mean both you and your child. You will need different kinds of doctors to help you with your rare disease. Specialists will know the most about your disease and which specific treatments are best.... read >
The Cost of Prescription Medications Has Risen by More Than 20% in the Past Year
See our Disability and Insurance web page for updated content—to learn more about finding insurance and filing claims successfully in order to access the treatments you need at an affordable price or set up a disability income stream if you can no... read >
Awareness: The Key to Unlocking the Mystery of IH
Without awareness, we are lost. Before you knew that idiopathic hypersomnia existed, before you connected your symptoms or those of a loved one with an actual neurologic disorder called IH, you had no awareness. Physicians who have not been... read >