SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Current actions
YOU Can Get Us #BeyondSleepy! Help Us Raise $24,000 by December 31st!
The work of any rare disease organization naturally relies on community support, and this year—more than ever—you can help determine what the Hypersomnia Foundation can accomplish in 2021 by making a donation to HF today. Tony and Bertha Rye have... read >
U.S. Research Budget Advocacy Successes
Good news! The U.S. 2020 budget is passed, and research funding received strong support from our legislators. The highlight of the medical research budget is $41.7 billion for NIH. Advocates from the Hypersomnia Foundation and from hundreds of other... read >
In Case You Missed It! – January 2020
Happy New Year! Let’s start 2020 by being well informed! Get up to date with the news we’ve shared via social media in the latest “In Case You Missed It!” TAKE A 10-MIN SURVEY AND HELP NORD LEARN MORE ABOUT IH! The National Organization... read >
In Case You Missed It! – December 2019
Happy Holidays! As you enjoy the season with family and friends, we’ll keep you up to date with the news we’ve shared via social media in the latest “In Case You Missed It!” DOUBLE YOUR DONATION BY DEC. 31! Our End-of-Year Fundraising... read >
Help Kick Off Our 2019 LET’S GET #BEYONDSLEEPY Fundraising and IH Awareness Campaign
We are excited to kick off our 2019 “Let’s Get #BeyondSleepy!” fundraising and IH awareness campaign! It’s time to print or make your own “Let’s Get #BeyondSleepy!” sign and help spread awareness of IH and the Hypersomnia Foundation. Grab... read >
In Case You Missed It! – October/November 2019
The holiday season is upon us and our schedules quickly fill up! Keep up to date with the news we’ve shared via social media with the sleep disorder community since our last “In Case You Missed It!” So don’t worry if you’ve missed anything –... read >
Our Struggle for Prescription Drug Coverage – 2019 Survey Results
Did you know? Coverage and cost barriers prevent 40% of people with IH from taking the medication prescribed by the doctor. And almost 72% of people with IH have had their prescribed medications initially denied by their insurance company. Your responses... read >
Self-Advocacy Tips for People with IH and Related Disorders
How can you receive your best care from your healthcare providers? How do you negotiate for accommodations or benefits? We have the answers! The HF is pleased to announce the release of its new patient resource brochure: Self-Advocacy Tips for People with... read >
In Case You Missed It! – July 2019
Keep up to date with the news we’ve shared via social media in this month’s “In Case You Missed It!” URGENT: Health authorities warn that modafinil may cause fetal harm. CONGRATULATIONS: Dr. Caroline Maness of Emory University is the first... read >
HF Legislative Advocate Rebecca King Steps Up for Medication Access and Affordability Laws
The Hypersomnia Foundation has named Rebecca King, who is both a person with IH and an HF volunteer, as a Legislative Advocate. In this role, Rebecca will be leading HF efforts to assess the legislative landscape, select the issues and bills with the... read >