SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Research studies articles
Let Sleep Researchers Know What’s Important to YOU
HF urges the entire hypersomnia community, including people with IH, people with narcolepsy, all supporters and healthcare professionals, to take a short survey prepared by Project Sleep in partnership with the University of Arizona "to capture... read >
What Is It Like to Participate in a Clinical Trial?
“I don’t want to do it,” I said to my mom as we entered the elevator. “Let’s just go talk to them,” she replied to my dismay. I didn’t want to be there. I didn’t want to have hypersomnia. I didn’t want to do a clinical trial—it... read >
BUNIHPPS Study Final Reminder
This is your final reminder email about BUNIHPPS- a survey research study for patients with narcolepsy or idiopathic hypersomnia. Dr. William DeBassio and Sara Kowalczyk are the study investigators of the Boston University Narcolepsy and Idiopathic... read >
The First Multi-Site Clinical Trial for IH and Type 2 Narcolepsy in the US Is Underway
ARISE 201 is the first double-blind, placebo-controlled, crossover, multicenter study of a drug (BTD-001) for the treatment of idiopathic hypersomnia (IH) and type 2 narcolepsy (T2N) in adults. More than 20 study sites throughout the United States are... read >
BUNIHPPS – An Online Research Survey for Narcolepsy & IH Patients
https://www.hypersomniafoundation.org/research-study/bunihpps/ Dear IH Community members: A research team at Boston University has developed BUNIHPPS -- a survey research study for patients with narcolepsy and idiopathic hypersomnia. Also called the... read >
Research Opportunity
Victoria University, Melbourne Australia is commencing a study about the general health and well-being of people within three groups. One group will be those with both narcolepsy and cataplexy. Cataplexy is a sudden loss of muscle tone, often triggered... read >
Share Your Journey | My Way of Saying That Research on IH Matters
The day a doctor finally took me seriously when I told him about always being tired, oversleeping almost every day, and generally walking through life in a sleepy fog was one of the best days of my life. I wasn't lazy! I wasn't alone! There were other... read >
First Industry-Sponsored Clinical Trial of a Treatment for Idiopathic Hypersomnia and Narcolepsy without cataplexy
NeuroTrials, Inc., has begun recruiting people to take part in the testing of a new treatment for idiopathic hypersomnia and narcolepsy without cataplexy. This small phase 1 study will test the safety and efficacy of a drug that is taken by mouth and... read >