SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Research
Announcing Our Updated Research Studies Web Page!
We’re pleased to announce that we have updated our Research Studies web page (formerly titled Clinical Trials). By CLICKING HERE, you can see our latest information on ongoing research studies about idiopathic hypersomnia (IH) and related disorders,... read >
Please Recruit Your Friends, Partners, and Supporters to Help with Ground-breaking IH Research!
Have IH? If so, have your friends, partners and other supporters wondered how they can help people like you? Now here’s their chance – we need people who are NOT your blood relatives to take part in ground-breaking IH research! And all it requires is... read >
HF Announces the Launch of Its IH Research Award Program
Today the Hypersomnia Foundation is very proud to announce the launch of its idiopathic hypersomnia (IH) research award program. This program will provide funding to support medical students, physician residents and fellows, postdoctoral fellows, and... read >
Here’s How People with IH (and Their Supporters) Can Participate in Ground-breaking Research!
Dizzy? Having troubles with your bowels or bladder? Body temperature up? Blood pressure down? Heart rate up AND down? Any of this could be related to your IH. Whether or not you have these symptoms, you can help researchers, right now, to better... read >
Viewing Hypersomnias Through the Lens of Myotonic Dystrophy
The Hypersomnia Foundation is excited to welcome the Marigold Foundation as a community partner in our commitment to improving the lives of people living with idiopathic hypersomnia and related sleep disorders. The Marigold Foundation is committed to the... read >
Umecrine Cognition Expands Study of New Medicine GR3027 to IH
Everyone here at the Hypersomnia Foundation is always excited when researchers and pharmaceutical companies include IH as a part of their clinical trials and research. With each clinical trial and research project, we grow ever closer to more effective... read >
Need Surgery, But Have IH?
We’ve summarized a journal article that addresses some anesthesia considerations for patients with idiopathic hypersomnia. If you need to have surgery of any kind, you may want to share this information with your healthcare providers. Summary of:... read >
Arise Clinical Trial
CLINICAL TRIAL ENROLLING PATIENTS WITH IDIOPATHIC HYPERSOMNIA AND NARCOLEPSY TYPE 2 Balance Therapeutics is evaluating an investigational new drug BTD-001, to treat excessive daytime sleepiness in individuals diagnosed with idiopathic hypersomnia... read >
Let Sleep Researchers Know What’s Important to YOU
HF urges the entire hypersomnia community, including people with IH, people with narcolepsy, all supporters and healthcare professionals, to take a short survey prepared by Project Sleep in partnership with the University of Arizona "to capture... read >
Article Summary: Khan Z, Trotti LM. “Central Disorders of Hypersomnolence: Focus on the Narcolepsies and Idiopathic Hypersomnia.”
This article reviews three central disorders of hypersomnolence (CDH), which include narcolepsy type 1, narcolepsy type 2, and idiopathic hypersomnia. The main symptom patients experience in all three of these disorders is... read >