SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Research
See How Our Hypersomnia Patient Registry Has Helped Researchers!
You’ve participated, and NOW THERE ARE RESULTS! Our hypersomnia-specific patient registry, which was established at CoRDS (Coordination for Rare Diseases at Sanford) in 2016 and which has grown to nearly 1,500 participants, has already helped... read >
What Is GABA? How Does It Affect Hypersomnia? A New Video Series Explains!
What is GABAA? And how does it affect hypersomnia? We are very pleased to present a two-part video series by neuroscientist Amanda Freeman, PhD, of Emory University, which describes, in layman’s terms, exactly how y-aminobutyric acid, better known as... read >
7th International Narcolepsy Symposium Includes IH! (Part 1 of 2)
The 7th International Symposium on Narcolepsy, held in Boston earlier this fall, gathered both basic and clinical researchers from around the globe so they could share their latest findings with each other to help advance the field. Representatives from... read >
In Case You Missed It! – December 2018
As the end of 2018 draws near, we know that your family and other social obligations can take over your life. So the Hypersomnia Foundation is here to make things easier and more joyful! In this month’s “In Case You Missed It!,” we highlight some of... read >
Do People with IH Have Different Brains Than People Without IH?
Do people with IH have different brains than people without IH? According to a Canadian research study involving our prestigious Medical Advisory Board member, Dr. Thanh Dang-Vu, the answer is “yes.” We are very pleased to present this summary of the... read >
In Case You Missed It! – November 2018
As the holidays draw near, we know that life can get more hectic. So we’re here to make your life less stressful and more thankful! In this month’s “In Case You Missed It!,” we highlight some of the most important news and social media posts about... read >
Ask the Doctor – Drug Patents
Although the Hypersomnia Foundation is not currently accepting new submissions for its Ask the Doctor series, we are working to answer previously submitted questions that are of general interest to our hypersomnia community. Today we have Andrew Powell,... read >
HF Advocating for People with IH at Scientific Symposium
The Hypersomnia Foundation (HF) was delighted to participate in this September’s 7th International Symposium on Narcolepsy. The HF was invited, along with three other patient advocacy groups “to bring important and diverse perspectives on how best to... read >
In Case You Missed It! – September 2018
In case you missed it, here are highlights from our social media to keep you up-to-date! From HF board members raising hypersomnia awareness at the Myotonic Dystrophy Foundation Conference to an insightful commentary from a science writer living with... read >
In Case You Missed It! – August 2018
This new series highlights topics relating to sleep disorders that have been in the news and/or in our recent social media posts. Check here each month to make sure that you are up-to-date on the news relating to idiopathic hypersomnia and related sleep... read >