SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Raising awareness
A Soothing Balm: Healing a Painful Experience
NOTE: this is part 3 of a 3 part series. For Part 1, click HERE. For Part 2, click HERE. I want to add a postscript to my Personal Journey story that appeared in the July 2017 edition of the HF’s SomnusNooze. It relates to the traumatic experiences I... read >
The Hypersomnia Foundation at the World Sleep Congress in Prague
The Hypersomnia Foundation (HF) is thrilled to announce its attendance at the World Sleep Congress (WSC), hosted by the World Sleep Society, October 7 to 11, 2017 in Prague. The Congress is well attended by world clinical and scientific sleep... read >
Idiopathic Hypersomnia Standard Characteristics
It’s often a struggle to describe to others – sometimes to doctors – the essence of idiopathic hypersomnia. Now, the Hypersomnia Foundation presents Idiopathic Hypersomnia Standard Characteristics. This one-page document, reviewed and approved by... read >
A Letter to My Health Care System About Hypersomnia
BY: Karen Berger – MN-USA NOTE: this is part 2 of a 3 part series. For Part 1, click HERE. For Part 3, click HERE. I have had idiopathic hypersomnia (IH) since I was 15 and was finally diagnosed 11 years ago. Since then I have been doing well on... read >
Dr. Lynn Marie Trotti Presents at AAN Annual Meeting
AAN is the American Academy of Neurology, and the meeting was held in Boston, MA, April 22-28, 2017. The AAN Annual Meeting is the world's largest gathering of neurologists, bringing together more than 10,000 neurology professionals across the globe to... read >
Dear Abby Misses the Mark on IH
A “Dear Abby” advice column was recently forwarded to us by Noelle, a member of the hypersomnia community. In a letter to Abby, a mother in New Jersey asked what to do about her teenaged son’s complete inability to get himself up for school in the... read >
HF Board Member Featured as Guest on Top Docs Radio!
Hypersomnia Foundation’s Catherine Page-Rye will be live on Top Docs Radio, Tuesday April 18 at noon EDT. If you missed the live show, you can download it here. Cat aims to promote awareness and better understanding of idiopathic hypersomnia (IH) as... read >
World Sleep Day: Battling the Symptoms of Idiopathic Hypersomnia
World Sleep Day, an annual event, is a call to action by delegates from around the world to raise awareness about the many burdens of sleep problems and their prevention and management. This year WSD falls on Friday, March 17,... read >
Celebrate with the Hypersomnia Foundation
Celebrate with HF: Three Years of Awareness, Education, and Research A message from the new CEO/Chair: The Hypersomnia Foundation had a great year in 2016! As I look over the list of the year’s accomplishments, I am keenly aware of the tireless... read >
The Hypersomnia Foundation Joins the #GivingTuesday Movement with #BeyondSleepy Campaign
Press Release November 29, 2016 – Today The Hypersomnia Foundation, Inc., the leading hypersomnia advocacy and awareness non-profit, joins #GivingTuesday, a global day of giving that harnesses the collective power of individuals, communities and... read >