SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Raising awareness
In Case You Missed It! – September 2018
In case you missed it, here are highlights from our social media to keep you up-to-date! From HF board members raising hypersomnia awareness at the Myotonic Dystrophy Foundation Conference to an insightful commentary from a science writer living with... read >
Introducing Our New Medical Alert Card for IH Patients!
The Hypersomnia Foundation is pleased to announce that we have created a Medical Alert Card, designed expressly for people with idiopathic hypersomnia (IH). The card is FREE and can be downloaded from our website HERE. Our Medical Alert Card is... read >
The Hypersomnia Foundation (HF) Conference in Baltimore Last Month Was an Amazing Experience!
Last month’s HF Conference in Baltimore was an amazing experience, for both attendees and presenters. The numbers speak for themselves: Almost 200 persons in attendance (including patients, their families and supporters, medical professionals and... read >
Hypersomnia Foundation’s Awareness Activities in Baltimore a Great Success!
The Hypersomnia Foundation (HF) and its Board have just completed a week of very successful events in Baltimore to raise awareness of idiopathic hypersomnia (IH). First, the HF held its #BeyondSleepy Conference on June 2-3, attracting nearly 200... read >
Jack & Julie Scholarship Program Announces Its First Scholarship Recipient with IH
The Hypersomnia Foundation is very pleased to report that a Plantation, Florida, high school senior named Jenny is the first person with idiopathic hypersomnia (IH) to receive one of the $1,000 scholarships awarded this year by Project Sleep’s Jack... read >
Sign Up by Feb. 15 to Help Educate the Next Generation of Doctors About IH and Related Disorders!
Global Genes, a leading global non-profit advocacy organization for individuals with rare and genetic diseases, has announced a new program that will help patients with rare diseases (such as idiopathic hypersomnia) educate the next generation of doctors... read >
Idiopathic Hypersomnia Featured in Self Magazine!
The Hypersomnia Foundation's own Board Member, Catherine Page-Rye, and Medical Advisory Board Chair, Dr. Lynn Marie Trotti, were interviewed for this December 2017 article, which describes what it is like to live with idiopathic hypersomnia. Read the... read >
Board Member Amy Haraden Speaks About Living with IH at SLEEP2 Conference
On June 3, 2017, Board Member Amy Haraden participated in a Patient Panel at the SLEEP2 (PCORI) Conference organized by Project Sleep. SLEEP2 is a project co-led by the University of Arizona, the Sleep Research Network, and Project Sleep and is funded... read >
Show Your Support!
The Hypersomnia Foundation has a lot going on right now, and there are many ways to show your support! Donate Our 2017 Fall Fundraiser is underway. With your donations, HF has been able to launch and maintain a patient registry to aid research; hold... read >
Introducing the Updated HF Brochure!
In 2014, the Hypersomnia Foundation (HF) published a brochure written for people with idiopathic hypersomnia and their supporters. Since that time, over 3,500 brochures have been sent to physicians’ offices, at their request, for distribution. We have... read >