SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Raising awareness
Our Struggle for Prescription Drug Coverage – 2019 Survey Results
Did you know? Coverage and cost barriers prevent 40% of people with IH from taking the medication prescribed by the doctor. And almost 72% of people with IH have had their prescribed medications initially denied by their insurance company. Your responses... read >
Self-Advocacy Tips for People with IH and Related Disorders
How can you receive your best care from your healthcare providers? How do you negotiate for accommodations or benefits? We have the answers! The HF is pleased to announce the release of its new patient resource brochure: Self-Advocacy Tips for People with... read >
In Case You Missed It! – August 2019
It’s summer and we know you’re busy! Keep up to date with the news we’ve shared via social media with the sleep disorder community in this month’s “In Case You Missed It!” So don’t worry if you’ve missed anything – we’ve got you... read >
HF Is Raising Awareness of IH from Coast to Coast (and Down South, too!)
Have you seen us? The Hypersomnia Foundation has been here, there and everywhere lately, raising awareness of idiopathic hypersomnia (IH) and related sleep disorders! From Boston to Seattle, from Denver to San Antonio, we’ve been talking to medical... read >
In Case You Missed It! – July 2019
Keep up to date with the news we’ve shared via social media in this month’s “In Case You Missed It!” URGENT: Health authorities warn that modafinil may cause fetal harm. CONGRATULATIONS: Dr. Caroline Maness of Emory University is the first... read >
In Case You Missed It! – June 2019
Keep up to date with the news we’ve shared via social media with the sleep disorder community in this month’s “In Case You Missed It!” SUCCESS: Read about the recently approved legislation that will provide important funding for sleep... read >
IH Summary Expanded to Include Diagnostic Criteria
It’s often a struggle to describe to others – sometimes even to healthcare providers – the essence of idiopathic hypersomnia. To address this, HF prepared Idiopathic Hypersomnia Standard Characteristics in 2017 and made it available on our... read >
HF Legislative Advocate Rebecca King Steps Up for Medication Access and Affordability Laws
The Hypersomnia Foundation has named Rebecca King, who is both a person with IH and an HF volunteer, as a Legislative Advocate. In this role, Rebecca will be leading HF efforts to assess the legislative landscape, select the issues and bills with the... read >
In Case You Missed It! – May 2019
In this month’s “In Case You Missed It!”, keep up to date with news we’ve shared with the sleep disorder community via social media this past month. So don’t worry if you’ve missed anything – we’ve got you covered! CHECK OUT... read >
In Case You Missed It! – April 2019
Keep up to date with all the news we’ve shared with the sleep disorder community in this month’s “In Case You Missed It!” TAKE ACTION by clicking to support NORD’s advocacy. Read about a runner with IH competing in the upcoming Boston Marathon.... read >