SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: News
Welcome to the Hypersomnia Foundation Board, Betsy!
We are delighted to welcome Elizabeth (Betsy) Ashcraft to our Board of Directors. “Betsy has long been a supporter of the Hypersomnia Foundation, and we are excited to have someone with her talent and experience join the Board,” said Diane Powell,... read >
The Hypersomnia Foundation at the World Sleep Congress in Prague
The Hypersomnia Foundation (HF) is thrilled to announce its attendance at the World Sleep Congress (WSC), hosted by the World Sleep Society, October 7 to 11, 2017 in Prague. The Congress is well attended by world clinical and scientific sleep... read >
Arise Clinical Trial
CLINICAL TRIAL ENROLLING PATIENTS WITH IDIOPATHIC HYPERSOMNIA AND NARCOLEPSY TYPE 2 Balance Therapeutics is evaluating an investigational new drug BTD-001, to treat excessive daytime sleepiness in individuals diagnosed with idiopathic hypersomnia... read >
Dr. Lynn Marie Trotti Presents at AAN Annual Meeting
AAN is the American Academy of Neurology, and the meeting was held in Boston, MA, April 22-28, 2017. The AAN Annual Meeting is the world's largest gathering of neurologists, bringing together more than 10,000 neurology professionals across the globe to... read >
Let Sleep Researchers Know What’s Important to YOU
HF urges the entire hypersomnia community, including people with IH, people with narcolepsy, all supporters and healthcare professionals, to take a short survey prepared by Project Sleep in partnership with the University of Arizona "to capture... read >
Dear Abby Misses the Mark on IH
A “Dear Abby” advice column was recently forwarded to us by Noelle, a member of the hypersomnia community. In a letter to Abby, a mother in New Jersey asked what to do about her teenaged son’s complete inability to get himself up for school in the... read >
HF Board Member Featured as Guest on Top Docs Radio!
Hypersomnia Foundation’s Catherine Page-Rye will be live on Top Docs Radio, Tuesday April 18 at noon EDT. If you missed the live show, you can download it here. Cat aims to promote awareness and better understanding of idiopathic hypersomnia (IH) as... read >
World Sleep Day: Battling the Symptoms of Idiopathic Hypersomnia
World Sleep Day, an annual event, is a call to action by delegates from around the world to raise awareness about the many burdens of sleep problems and their prevention and management. This year WSD falls on Friday, March 17,... read >
Celebrate with the Hypersomnia Foundation
Celebrate with HF: Three Years of Awareness, Education, and Research A message from the new CEO/Chair: The Hypersomnia Foundation had a great year in 2016! As I look over the list of the year’s accomplishments, I am keenly aware of the tireless... read >