SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: News
U.S. News & World Report Features Struggles of Idiopathic Hypersomnia
An article published on May 11, 2015, in U.S. News & World Report highlights the struggles of two women whose lives are challenged by idiopathic hypersomnia. They are, as reporter Anna Miller explains, “at the sandman's beck and call.” One... read >
Hypersomnia Supporter Appreciation Day: Honoring Loved Ones & Celebrating Community
Happy Idiopathic Hypersomnia Supporter Appreciation Day! We join our Facebook community on May 1st and celebrate this special day by honoring those who make the world better and make life possible for those with IH. Sometimes we just need an ear to... read >
CNN Features Hypersomnia in Three Part Series
Set your DVRs, check it out live, or catch a sneak peak, but don’t miss this program on sleep and idiopathic hypersomnia on CNN! Dr. Sanjay Gupta not only undergoes a Multiple Sleep Latency Test at Emory Sleep Lab, but also discusses idiopathic... read >
First Industry-Sponsored Clinical Trial of a Treatment for Idiopathic Hypersomnia and Narcolepsy without cataplexy
NeuroTrials, Inc., has begun recruiting people to take part in the testing of a new treatment for idiopathic hypersomnia and narcolepsy without cataplexy. This small phase 1 study will test the safety and efficacy of a drug that is taken by mouth and... read >
Dr. David Rye Presents at 2013 Narcolepsy Network
Dr. David Rye's 2013 session at the Narcolepsy Network conference entitled: What's in a Name? Understanding the Origins of the Terminologies for the Family of Hypersomnias. A fascinating examination of semantics and the signs and symptoms of... read >
Parallels Between Progressive Rock and Idiopathic Hypersomnia
Katie Gleason does an excellent job sharing how idiopathic hypersomnia feels to her in a featured essay on stereoembersmagazine.com. I was diagnosed with ADHD before idiopathic hypersomnia, but I suspect the hypersomnia only increases the... read >
Submission to the FDA’s Regarding Hypersomnias
On September 24, 2013, the US Food and Drug Administration (FDA) held a public meeting to solicit information on the impact of narcolepsy on affected individuals’ daily lives and the effect of currently available medication on their disease symptoms. A... read >
The Hypersomnia Foundation’s 501(c)(3) Status Has Been Approved!
The Hypersomnia Foundation received a letter from the Internal Revenue Service stating that we have met all of the requirements to be a charitable organization. That’s right. The IRS has officially approved the Hypersomnia Foundation's 501(c)(3)... read >
The Hypersomnia Foundation Has Submitted Our 501(c)(3)!
The Hypersomnia Foundation Board members have been hard at work! After countless hours of collaborative work, we have finally completed our 501(c)(3) application and submitted it to the IRS for approval. One component of the 501(c)(3) application is... read >
Idiopathic Hypersomnia Symposium at the World Association of Sleep Medicine Meeting
A symposium entitled, “Idiopathic Hypersomnia: Past, Present and Future,” and co-chaired by Drs. Michel Billiard (Montpellier, France) and Sona Nevsimalova (Charles University, Prague, Czech Republic), took place at the World Association of Sleep... read >