SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: HF announcements
Announcing Two New Web Pages—From Parenthood to Birth Control and More!
Are you a parent who has IH or narcolepsy, or are you thinking of becoming one? Do your hypersomnia medications interact with your hormonal birth control or hormone replacement therapy? Are you a healthcare provider caring for people with hypersomnias? If... read >
Announcing New Web Pages on Disability and Health & Prescription Medicine Insurance
Insurance coverage is a major concern for people with chronic disease. Will health insurance appropriately cover doctor appointments, tests and treatments? If insurance doesn’t cover certain prescription medications, how can they be accessed for the... read >
HF Announces Task Force to Focus on Diversity, Equity and Inclusion
The Hypersomnia Foundation announced its Diversity, Equity and Inclusion (DEI) Task Force last week on social media. This group of volunteers and HF Board Members are working to understand and identify the challenges people of diverse backgrounds may... read >
Tips for Supporters of People With Hypersomnias
Having idiopathic hypersomnia (IH) or a related sleep disorder can be incredibly stressful for both person(s) who have a hypersomnia (PWH) and their supporters. We’ve just launched a new web page providing Tips for Supporters, which were developed by... read >
Announcing Our New Webpage—Sleeping/Napping in Your Car Safely
Start talking to someone with a hypersomnia about how hard it can be to stay awake all day, and soon enough we’ll be telling stories about napping in our cars. Many of us have our favorite napping spots and strategies. We also have concerns—are we... read >
Ride With the Sleep/Wake Cyclers to Raise Money for Research
The Hypersomnia Foundation community is forming a bike team, the Sleep/Wake Cyclers, to raise money for research on idiopathic hypersomnia and related sleep disorders. Our inaugural ride will be Saturday, June 12, 2021! We need riders! All ages... read >
A Message From Diane Powell, Hypersomnia Foundation’s Board Chair/CEO
In the spring of 2020, as the Covid-19 lockdowns began, we at the HF counted ourselves very fortunate that the Foundation has always minimized operating costs by working remotely and relying on a volunteer Board. Still, we lamented cancelling our... read >
YOU Can Get Us #BeyondSleepy! Help Us Raise $24,000 by December 31st!
The work of any rare disease organization naturally relies on community support, and this year—more than ever—you can help determine what the Hypersomnia Foundation can accomplish in 2021 by making a donation to HF today. Tony and Bertha Rye have... read >
A Call to Action: Racial Disparities in Hypersomnia Disorders
The Hypersomnia Foundation has long felt that welcoming everyone, regardless of ethnicity, gender, religion, or any other demographic, is essential to who we are, and must be incorporated into our efforts to raise awareness and reach undiagnosed patients.... read >
In Case You Missed It! – January 2020
Happy New Year! Let’s start 2020 by being well informed! Get up to date with the news we’ve shared via social media in the latest “In Case You Missed It!” TAKE A 10-MIN SURVEY AND HELP NORD LEARN MORE ABOUT IH! The National Organization... read >