SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Hypersomnias
Share Your Journey | A Two for One Challenge
Until the summer after I graduated from high school, I had seemingly unlimited energy. A typical day for me would be waking at 5:00 am, attending class until 1:30, and then cramming in homework before heading to marching band or track practice. Often... read >
Dr. David Rye Presents at 2013 Narcolepsy Network
Dr. David Rye's 2013 session at the Narcolepsy Network conference entitled: What's in a Name? Understanding the Origins of the Terminologies for the Family of Hypersomnias. A fascinating examination of semantics and the signs and symptoms of... read >
Parallels Between Progressive Rock and Idiopathic Hypersomnia
Katie Gleason does an excellent job sharing how idiopathic hypersomnia feels to her in a featured essay on stereoembersmagazine.com. I was diagnosed with ADHD before idiopathic hypersomnia, but I suspect the hypersomnia only increases the... read >
How Long Does It Take for Sodium Oxybate to Work?
Background According to the Narcolepsy Network, although it affects more than 200,000 people in the U.S., narcolepsy is estimated to be undiagnosed or untreated in 75% of people with the disorder. This lack of recognition leads to delays in effective... read >
Can Actigraphy Help to Differentiate People with Narcolepsy from People with Idiopathic Hypersomnia?
Why is this study important? Type 1 narcolepsy (T1N) and idiopathic hypersomnia (IH) are both disorders of central hypersomnolence. Even though the International Classification of Sleep Disorders, third edition, includes a finding of 11 hours of sleep... read >
Hypocretin Level as a Biomarker in KLS
Background Kleine-Levin syndrome (KLS) is a rare disorder in which affected people experience episodes at least once per year during which they sleep for at least 11 hours out of every day (but often for days at a time), eat excessively (megaphagia),... read >
Does Modafinil Improve Sleepiness in People With IH Without Long Sleep Time?
Background In Europe, modafinil used to be available as a treatment for the excessive daytime sleepiness (EDS) associated with idiopathic hypersomnia (IH). However, in 2010, the European Medicines Agency (EMA, the equivalent of the Food and Drug... read >
Summary of Research into Clarithromycin as a Hypersomnia Treatment
GABA is known to promote sleep and decreased consciousness, and many patients with CNS hypersomnia have been found to have endogenous GABA-A receptor hyper-reactivity. Flumazenil, a known GABA-A antagonist, has been shown to reduce symptoms in these... read >
Today Show Features Teenager with KLS
This episode of the Today Show, which originally aired on November 20, 2012, offers a glimpse into the sleep-filled life of Nicole Delien, a 17-year-old with Kleine-Levin syndrome, and provides an interview with the physician who diagnosed her disorder,... read >