SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Hypersomnias
Idiopathic Hypersomnia Featured in Self Magazine!
The Hypersomnia Foundation's own Board Member, Catherine Page-Rye, and Medical Advisory Board Chair, Dr. Lynn Marie Trotti, were interviewed for this December 2017 article, which describes what it is like to live with idiopathic hypersomnia. Read the... read >
Umecrine Cognition Expands Study of New Medicine GR3027 to IH
Everyone here at the Hypersomnia Foundation is always excited when researchers and pharmaceutical companies include IH as a part of their clinical trials and research. With each clinical trial and research project, we grow ever closer to more effective... read >
Board Member Amy Haraden Speaks About Living with IH at SLEEP2 Conference
On June 3, 2017, Board Member Amy Haraden participated in a Patient Panel at the SLEEP2 (PCORI) Conference organized by Project Sleep. SLEEP2 is a project co-led by the University of Arizona, the Sleep Research Network, and Project Sleep and is funded... read >
Need Surgery, But Have IH?
We’ve summarized a journal article that addresses some anesthesia considerations for patients with idiopathic hypersomnia. If you need to have surgery of any kind, you may want to share this information with your healthcare providers. Summary of:... read >
The Hypersomnia Foundation at the World Sleep Congress in Prague
The Hypersomnia Foundation (HF) is thrilled to announce its attendance at the World Sleep Congress (WSC), hosted by the World Sleep Society, October 7 to 11, 2017 in Prague. The Congress is well attended by world clinical and scientific sleep... read >
Idiopathic Hypersomnia Standard Characteristics
It’s often a struggle to describe to others – sometimes to doctors – the essence of idiopathic hypersomnia. Now, the Hypersomnia Foundation presents Idiopathic Hypersomnia Standard Characteristics. This one-page document, reviewed and approved by... read >
Dr. Trotti Answers Questions on Diagnostics Relating to Hypersomnia
Dr. Lynn Marie Trotti answers questions about diagnostics relating to hypersomnia and concludes... Q - What is the “gold-standard” for diagnosis of narcolepsy? What about IH? A - For narcolepsy type 1 (or narcolepsy with cataplexy), measurement of... read >
Dear Abby Misses the Mark on IH
A “Dear Abby” advice column was recently forwarded to us by Noelle, a member of the hypersomnia community. In a letter to Abby, a mother in New Jersey asked what to do about her teenaged son’s complete inability to get himself up for school in the... read >
HF Board Member Featured as Guest on Top Docs Radio!
Hypersomnia Foundation’s Catherine Page-Rye will be live on Top Docs Radio, Tuesday April 18 at noon EDT. If you missed the live show, you can download it here. Cat aims to promote awareness and better understanding of idiopathic hypersomnia (IH) as... read >
Article Summary: Khan Z, Trotti LM. “Central Disorders of Hypersomnolence: Focus on the Narcolepsies and Idiopathic Hypersomnia.”
This article reviews three central disorders of hypersomnolence (CDH), which include narcolepsy type 1, narcolepsy type 2, and idiopathic hypersomnia. The main symptom patients experience in all three of these disorders is... read >