SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Idiopathic hypersomnia
In Case You Missed It! – December 2018
As the end of 2018 draws near, we know that your family and other social obligations can take over your life. So the Hypersomnia Foundation is here to make things easier and more joyful! In this month’s “In Case You Missed It!,” we highlight some of... read >
Do People with IH Have Different Brains Than People Without IH?
Do people with IH have different brains than people without IH? According to a Canadian research study involving our prestigious Medical Advisory Board member, Dr. Thanh Dang-Vu, the answer is “yes.” We are very pleased to present this summary of the... read >
Introducing Our New Anesthesia Guide for People with IH!
The Hypersomnia Foundation is pleased to announce that we have created a new Anesthesia Guide, expressly designed for people with idiopathic hypersomnia (IH). This document, entitled “Anesthesia and IH: A Patient Guide,” is free for download from... read >
Introducing Our New Medical Alert Card for IH Patients!
The Hypersomnia Foundation is pleased to announce that we have created a Medical Alert Card, designed expressly for people with idiopathic hypersomnia (IH). The card is FREE and can be downloaded from our website HERE. Our Medical Alert Card is... read >
Ask the Doctor: Is My Inability to Concentrate Due to Idiopathic Hypersomnia (IH) or ADHD?
Although the Hypersomnia Foundation is not currently accepting new submissions for its Ask the Doctor series, we are working to answer previously submitted questions that are of general interest to our hypersomnia community. Today we have Dr. David... read >
Ask the Doctor: What Is POTS, and What Does It Have to Do With Hypersomnias?
Although the Hypersomnia Foundation is not currently accepting new submissions for its Ask the Doctor series, we are working to answer previously submitted questions that are of general interest to our hypersomnia community. Today we have Dr. Mitchell... read >
Viewing Hypersomnias Through the Lens of Myotonic Dystrophy
The Hypersomnia Foundation is excited to welcome the Marigold Foundation as a community partner in our commitment to improving the lives of people living with idiopathic hypersomnia and related sleep disorders. The Marigold Foundation is committed to the... read >
Idiopathic Hypersomnia Featured in Self Magazine!
The Hypersomnia Foundation's own Board Member, Catherine Page-Rye, and Medical Advisory Board Chair, Dr. Lynn Marie Trotti, were interviewed for this December 2017 article, which describes what it is like to live with idiopathic hypersomnia. Read the... read >
Umecrine Cognition Expands Study of New Medicine GR3027 to IH
Everyone here at the Hypersomnia Foundation is always excited when researchers and pharmaceutical companies include IH as a part of their clinical trials and research. With each clinical trial and research project, we grow ever closer to more effective... read >
Board Member Amy Haraden Speaks About Living with IH at SLEEP2 Conference
On June 3, 2017, Board Member Amy Haraden participated in a Patient Panel at the SLEEP2 (PCORI) Conference organized by Project Sleep. SLEEP2 is a project co-led by the University of Arizona, the Sleep Research Network, and Project Sleep and is funded... read >