SomnusNooze e-newsletter
News, stories and updates from the world of sleep
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VIRTUAL: HF’s The Research Continues
The COVID-19 pandemic has left many in the hypersomnia community wondering about the status of clinical trials and research studies—how have they been affected by the lockdowns and safety advisories? […]
Free
VIRTUAL: Your Best Self—New Ways of Thinking About Disability & Support
Join us on January 30 for a FREE, interactive, 90-minute virtual program, during which you will learn about the emotional aspects of disability and how to choose the right support group for you—or even start your own. You will not want to miss this virtual event! Sessions will include discussions with: Anjel Burgess, Esq, of […]
Free
VIRTUAL MEET & GREET: “I’m Newly Diagnosed – What Does This Mean?”
Introducing the Hypersomnia Foundation’s new “MEET & GREET” series - interactive meetings with members of our community, to give us a chance to talk informally, and let community members meet one another! The first meeting in the series, “I’m Newly Diagnosed - What Does This Mean?” is scheduled for May 1 at 1:00 p.m. Eastern/10:00 […]
Free
VIRTUAL: Diagnosing Hypersomnia Differently—A European Proposal
Join us on May 11 at noon (Eastern) for a FREE virtual event: Diagnosing Hypersomnia Differently—A European Proposal. Did you know? Sleep researchers around the world are working hard to […]
VIRTUAL: APSS SLEEP 2021 (a conference for sleep medicine professionals)
The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the […]
VIRTUAL – Sleep/Wake Cyclers Ride for Research 2021
The Hypersomnia Foundation community is forming a bike team, the Sleep/Wake Cyclers, to raise money for research on idiopathic hypersomnia and related sleep disorders. Our inaugural ride will be Saturday, June 12, 2021. All ages and abilities are welcome. Whether your ride two miles or 200, ride on a bike trail, around your neighborhood, on […]
VIRTUAL MEET & GREET – “Self Advocacy: Getting Your Best Care”
Join us on Thursday, June 17 at 7:00 p.m. (Eastern) for our VIRTUAL MEET & GREET - “Self-Advocacy: Getting Your Best Care.” Turn your cameras on as we talk about […]
VIRTUAL – Your Best Self: Getting Your Meds!
Join us Thursday, June 24, 2021 at 12:00-1:30 p.m. (Eastern) for our FREE virtual event "Your Best Self: Getting Your Meds!”- Reducing out of pocket cost for prescription medications and appealing insurance denials. In an ideal world, your doctor gives you a prescription for a medication, the pharmacy fills it promptly, and insurance covers all […]
VIRTUAL: NIH NINDS Health Disparities and Inequities in Neurological Disorders Workshop
Registration is now open for the upcoming NIH NINDS HEADWAY Health Disparities and Inequities in Neurological Disorders Workshop. The event will be held virtually from September 22nd through 24th from 12-5 pm ET daily. A detailed agenda is available on the event website. This workshop is open to all, including patients, caregivers, advocates, researchers, healthcare […]
VIRTUAL: Society of Anesthesia and Sleep Medicine (SASM) 2021 Annual Meeting
The Society of Anesthesia and Sleep Medicine (SASM) 2021 Virtual Annual Meeting “Sleep Health: The New Vital Sign” Registration is now open for the SASM Annual Meeting on October 7-8, 2021. This free virtual conference is open to patients as well as healthcare providers. Presentations and discussions tentatively scheduled are: Sleep Health and Why We Should […]