SomnusNooze e-newsletter

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Hypersomnia Foundation’s Catherine Page-Rye will be live on Top Docs Radio, Tuesday April 18 at noon EDT.

1:00-4:30PM – HF Regional Conference at the historic Boston Public Library at Copley Square, 700 Boylston St., Boston, MA 02116 We have booked Rabb Lecture Hall in the newly renovated Johnson Building at the Boston Public Library for another fabulous regional conference featuring dynamic speakers.In this state-of-the-art facility, our outstanding speakers will cover research updates […]

HF is getting ready to mark Idiopathic Hypersomnia Awareness Week, September 4-10 ! Created by Hypersomnolence Australia, we plan to do our part to help raise awareness during IHAW. Please put the dates in your calendar, and be sure to check our social media each day during this important awareness event!

The Hypersomnia Foundation will have a booth at the Exhibit Hall at the World Sleep Congress meeting in Prague this October! “We believe it is important to take this opportunity to increase awareness of IH at this important global meeting of sleep professionals,” said Diane Powell, Chairwoman of HF’s Board of Directors. “It’s also encouraging […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among nearly 2,000 college health providers to raise awareness of IH and provide education about rare sleep disorders to those most likely to be consulted by sleepy students. As part of […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among more than 5,000 sleep medicine providers, researchers and pharmaceutical companies to raise awareness of IH and related disorders and advocate for increased research and better treatments. Attendees come from around […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among nearly 3,600 school counselors to raise awareness of IH and provide education about rare sleep disorders to those most likely to be sent students who frequently sleep in class. As […]

This Seattle meeting will be one of a series of educational meetings HF will begin holding in 2019 and beyond. We hope that holding one-day meetings in a variety of locations will allow more people with IH and related disorders, as well as their supporters, to take part in an HF event. This gathering will […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! As part of HF’s new 2019 initiative, we are reaching out to the professionals who are most likely to encounter sleepy people! At this conference, HF will exhibit and network among 2,500 medical students and family […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! The Hypersomnia Foundation has accepted an invitation to work with SBSM in the preparation of an educational program on idiopathic hypersomnia. Dr. Lynn Marie Trotti, chair of HF’s Medical Advisory Board, will provide two lectures, and […]

Understanding Narcolepsy and Hypersomnia: Insights and Perspectives This free event is open to everyone! HF is collaborating with Wake Up Narcolepsy to hold an Education Day on Saturday, September 21st in Vancouver, B.C. at Sleep Expo 2019:  This one day conference is for people with narcolepsy and/or idiopathic hypersomnia, their families, educators, clinicians and researchers. […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! As part of HF’s new 2019 initiative, we are reaching out to the professionals who are most likely to encounter sleepy people! At this conference, HF will exhibit and network among 5,000 family medicine physicians in […]

The Hypersomnia Foundation is holding a Patient Education Meeting on Saturday, October 19th in Chicago at the Sheraton Suites O'Hare Hotel, from 10:00 a.m. - 3:00 p.m. Tickets are $25 and includes a buffet lunch. Registered event attendees are invited to attend a free Meet & Greet socializing hour planned for Friday, October 18 at […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF is participating in this event and providing a patient panel on Friday, March 27, 4:00 PM - 5: 30 PM, titled Patient & Physician Stories & Perspectives in an Era of Novel Treatment Modalities. HF's […]

The Hypersomnia Foundation has CANCELLED our June 2020 Conference. Due to the COVID-19 restrictions and concern for the healthand safety of our community, the Hypersomnia Foundation is canceling our June 2020 Conference in Philadelphia. While there is no doubt this is the right decision, and many have lost much more to this pandemic, it’s still […]

Note:  If you are looking for info on HF's conference in June 2020 for people with idiopathic hypersomnia, narcolepsy & KLS and their supporters (friends, families, and significant others!), please click here: Beyond Sleepy in Philadelphia The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise […]

This event is open to both patients and sleep medicine professionals. Due to the COVID-19 pandemic, this meeting will be virtual. Get the program, keeping in mind that Berlin is in the Central European Time zone. However, the events will be uploaded afterward and available on demand. Register by August 31, 2020.

As part of our mission to raise awareness about IH and related disorders, HF will be attending the American School Health Association’s 2020 virtual conference, where our Medical Advisory Board chair, Dr. Lynn Marie Trotti, will discuss Sleepy Students and Idiopathic Hypersomnia.  Greater awareness of IH by school health professionals means a greater chance that […]

FREE VIRTUAL CONFERENCE! The Society of Anesthesia and Sleep Medicine’s (SASM) 10th Annual Meeting is October 1-2, 2020. This year's theme is “Innovation & Synergism in Sleep, Perioperative Care & Chronic Pain: The Future is Here” and will feature a keynote address from Dr. Jerome Adams, MD, U.S. Surgeon General. Note: If you can't attend […]

The COVID-19 pandemic has left many in the hypersomnia community wondering about the status of clinical trials and research studies—how have they been affected by the lockdowns and safety advisories? Find out the latest answers! Join us on October 24 for a FREE, interactive, 90-minute virtual program, during which hypersomnia experts from both the research […]

Join us on January 30 for a FREE, interactive, 90-minute virtual program, during which you will learn about the emotional aspects of disability and how to choose the right support […]

Introducing the Hypersomnia Foundation’s new “MEET & GREET” series - interactive meetings with members of our community, to give us a chance to talk informally, and let community members meet […]

Join us on May 11 at noon (Eastern) for a FREE virtual event: Diagnosing Hypersomnia Differently—A European Proposal. Did you know? Sleep researchers around the world are working hard to […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the […]

Join us on Thursday, June 17 at 7:00 p.m. (Eastern) for our VIRTUAL MEET & GREET - “Self-Advocacy: Getting Your Best Care.” Turn your cameras on as we talk about […]

Join us Thursday, June 24, 2021 at 12:00-1:30 p.m. (Eastern) for our FREE virtual event "Your Best Self: Getting Your Meds!”- Reducing out of pocket cost for prescription medications and […]

Registration is now open for the upcoming NIH NINDS HEADWAY Health Disparities and Inequities in Neurological Disorders Workshop. The event will be held virtually from September 22nd through 24th from […]

The Society of Anesthesia and Sleep Medicine (SASM) 2021 Virtual Annual Meeting “Sleep Health: The New Vital Sign” Registration is now open for the SASM Annual Meeting on October 7-8, […]

For registration in French, click HERE. The Canadian Sleep Society (CSS) is hosting a virtual conference. In addition to the main scientific program, it will also feature patient engagement sessions […]

Reaching Every Patient: A Health Equity Conversation - An HF VIRTUAL Event Saturday, November 13th 12noon-2pm (EST) Let’s talk about how we can help everyone with a rare sleep disorder […]

Join us on Saturday, January 15, 2022 at 1:00-2:30 p.m. (Eastern)  for our VIRTUAL MEET & GREET - "We're in This Together!" Is it a challenge for you (and your […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. Check out the keynote […]

Join us in Charlotte, North Carolina on June 3 – 5, 2022! Join us in beautiful Charlotte for the Hypersomnia Foundation's #BeyondSleepy Conference 2022 for people with idiopathic hypersomnia, narcolepsy, […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the website https://www.sleepmeeting.org/about/: SLEEP […]

NOTE: The intended audience for this CME/CE certified symposium is sleep specialists, psychiatrists, neurologists, and advanced-practice clinicians. The Hypersomnia Foundation is partnering with Haymarket Medical Education on a complimentary accredited […]

UNIGHT - Discuss. Share. Connect. Monday, January 30th at 7:00 p.m. (Eastern) Join us on the last Monday of every month via Zoom at 7:00 PM (Eastern) / 4:00 PM […]

UNIGHT - Discuss. Share. Connect. Monday, February 20th at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a […]

UNIGHT - Discuss. Share. Connect. Monday, March 27th at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a […]

UNIGHT - Discuss. Share. Connect. Monday, April 24 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly […]

UNIGHT - Discuss. Share. Connect. Monday, May 22 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly […]

Join us in Indianapolis, Indiana from June 2 to 4, 2023 for the Hypersomnia Foundation's 2023 #BeyondSleepy Conference for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome and their supporters. […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the website https://www.sleepmeeting.org/about/: SLEEP […]

UNIGHT - Discuss. Share. Connect. Monday, June 26 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly […]

UNIGHT - Discuss. Share. Connect. Monday, July 31 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly […]

UNIGHT - Discuss. Share. Connect. Monday, August 28 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly […]

UNIGHT - Discuss. Share. Connect. Monday, September 25 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly […]

UNIGHT - Discuss. Share. Connect. Monday, November 27 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly […]

UNIGHT - Discuss. Share. Connect. Monday, December 18 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about […]

UNIGHT - Discuss. Share. Connect. Monday, January 29 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about […]

UNIGHT - Discuss. Share. Connect. Monday, February 26, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion […]

UNIGHT - Discuss. Share. Connect. Monday, March 25, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion […]

UNIGHT - Discuss. Share. Connect. Monday, April 29, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion […]

Join us in Houston, Texas from May 31 - June 2, 2024!   REGISTER HERE! Join us in beautiful Houston, Texas for the Hypersomnia Foundation's #BeyondSleepy 2024 Conference for people with […]

UNIGHT - Discuss. Share. Connect. Monday, June 24, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion […]

UNIGHT - Discuss. Share. Connect. Monday, July 29, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion […]

UNIGHT - Discuss. Share. Connect. Monday, August 26, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion […]