SomnusNooze e-newsletter

News, stories and updates from the world of sleep




VIRTUAL: NIH NINDS Health Disparities and Inequities in Neurological Disorders Workshop

Registration is now open for the upcoming NIH NINDS HEADWAY Health Disparities and Inequities in Neurological Disorders Workshop. The event will be held virtually from September 22nd through 24th from 12-5 pm ET daily. A detailed agenda is available on the event website. This workshop is open to all, including patients, caregivers, advocates, researchers, healthcare […]



VIRTUAL: Society of Anesthesia and Sleep Medicine (SASM) 2021 Annual Meeting

The Society of Anesthesia and Sleep Medicine (SASM) 2021 Virtual Annual Meeting “Sleep Health: The New Vital Sign” Registration is now open for the SASM Annual Meeting on October 7-8, 2021. This free virtual conference is open to patients as well as healthcare providers. Presentations and discussions tentatively scheduled are: Sleep Health and Why We Should […]


VIRTUAL: Canadian Sleep Society (CSS) Conference 2021

For registration in French, click HERE. The Canadian Sleep Society (CSS) is hosting a virtual conference. In addition to the main scientific program, it will also feature patient engagement sessions for the public, which will be fully accessible online for free. See the full details HERE. Of particular interest to people with narcolepsy or idiopathic hypersomnia […]



VIRTUAL – Reaching Every Patient: A Health Equity Conversation

Reaching Every Patient: A Health Equity Conversation - An HF VIRTUAL Event Saturday, November 13th 12noon-2pm (EST) Let’s talk about how we can help everyone with a rare sleep disorder get a proper diagnosis and treatment! Many people with rare sleep disorders face diagnosis and treatment delays. Some don’t seem to get a diagnosis at […]


Free



VIRTUAL MEET & GREET – “We’re in This Together!”

Join us on Saturday, January 15, 2022 at 1:00-2:30 p.m. (Eastern)  for our VIRTUAL MEET & GREET - "We're in This Together!" Is it a challenge for you (and your supporters) to manage life with a sleep disorder? You’re not alone! We invite people with IH, KLS, and narcolepsy AND their supporters to join in […]




CHARLOTTE, NC – HF Conference


Sheraton Le Meridien Charlotte Hotel Complex


555 South McDowell Street, South Tower, Charlotte, NC, United States

Join us in Charlotte, North Carolina on June 3 – 5, 2022! Join us in beautiful Charlotte for the Hypersomnia Foundation's #BeyondSleepy Conference 2022 for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin Syndrome and their supporters. After such a long hiatus from meeting in person, we are planning a great mix of speakers covering the latest […]


CHARLOTTE: APSS SLEEP 2022 (a conference for sleep medicine professionals)

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the website https://www.sleepmeeting.org/about/: SLEEP is the annual meeting of the Associated Professional Sleep Societies, LLC (APSS), which is a joint venture of the American Academy of Sleep Medicine (AASM) […]


CHARLOTTE, NC: Accredited Continuing Education Dinner Symposium


The Westin Charlotte


601 South College Street, Charlotte, NC, United States

NOTE: The intended audience for this CME/CE certified symposium is sleep specialists, psychiatrists, neurologists, and advanced-practice clinicians. The Hypersomnia Foundation is partnering with Haymarket Medical Education on a complimentary accredited continuing education dinner symposium, “A New Dawn for Better Outcomes in Patients With Idiopathic Hypersomnia: New Data, New Guidance, New Treatments" being held on Sunday, […]



Virtual: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, January 30th at 7:00 p.m. (Eastern) Join us on the last Monday of every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various […]


Free



VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, February 20th at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living […]



VIRTUAL and IN-PERSON – Salt Lake City, UT – #BeyondSleepySatellite HF Conference

The Hypersomnia Foundation is hosting a series of one-day hybrid conferences (in-person and virtual) throughout the United States in 2023. Our first #BeyondSleepySatellite hybrid event is March 4th from 10:00 a.m.-4:00 p.m. (MST) in Salt Lake City at the Sheraton Salt Lake City Hotel.  Registration for #BeyondSleepySatellite - Together in Salt Lake City is $25 […]


VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, March 27th at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living […]



VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, April 24 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with […]



VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, May 22 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with […]



Indianapolis, IN – HF Conference


The Alexander


333 S Delaware Street, Indianapolis, IN, United States

Join us in Indianapolis, Indiana from June 2 to 4, 2023 for the Hypersomnia Foundation's 2023 #BeyondSleepy Conference for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome and their supporters. Registration for in-person attendance is $99. Thanks to generous support from our sponsors, virtual registration is free. Presentations will cover the latest in research, treatments, […]


Free – $99


Indianapolis: APSS SLEEP 2023 (a conference for sleep medicine professionals)

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the website https://www.sleepmeeting.org/about/: SLEEP is the annual meeting of the Associated Professional Sleep Societies, LLC (APSS), which is a joint venture of the American Academy of Sleep Medicine (AASM) […]


VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, June 26 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with […]



VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, July 31 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with […]



VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, August 28 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with […]



VIRTUAL and IN-PERSON – Philadelphia, PA – #BeyondSleepySatellite HF Conference


Delta Hotel by Marritt - Philadelphia Airport


500 Stevens Drive, Philadelphia, PA, United States

The Hypersomnia Foundation is hosting a series of one-day hybrid conferences throughout the United States, providing a wonderful opportunity to connect with others living life with a sleep disorder. Our next #BeyondSleepySatellite event is in Philadelphia on Saturday, September 23, 2023 from 10:00 a.m. to 3:00 p.m. (ET)  at the Delta Hotel by Marriott / […]


VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, September 25 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with […]



VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, November 27 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with […]



VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, December 18 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is Monday, December 18 at 7:00 PM (Eastern) / 4:00 PM (Pacific) with special […]



VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, January 29 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is Monday, January 29 at 7:00 PM (Eastern) / 4:00 PM (Pacific) with special […]



VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, February 26, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is Monday, February 26th. We will meet via Zoom at 7:00 PM […]



VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, March 25, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The March UNIGHT meeting will discuss “Nutritional Considerations for Central Disorders of Hypersomnolence” with special guest […]



VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, April 29, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. This month’s UNIGHT discusses “Mental Health in Central Disorders of Hypersomnolence” with special guest Alicia […]



Houston, TX – HF Conference


C Baldwin Hilton Hotel in Houston


400 Dallas Street, Houston, TX, United States

Join us in Houston, Texas from May 31 - June 2, 2024!   REGISTER HERE! Join us in beautiful Houston, Texas for the Hypersomnia Foundation's #BeyondSleepy 2024 Conference for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome and their supporters. We have a wonderful mix of speakers covering the latest in research, treatments, and clinical trials; networking and […]


Free – $50



VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, June 24, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join this month’s UNIGHT for a discussion with Maggie G. Lavender, MSN, RN, FNP-C, on […]



VIRTUAL: UNIGHT – Discuss. Share. Connect.

UNIGHT - Discuss. Share. Connect. Monday, July 29, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is a discussion on “Using Your Voice For Change” featuring special guest Josh […]