SomnusNooze e-newsletter

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF is participating in this event and providing a patient panel on Friday, March 27, 4:00 PM - 5: 30 PM, titled Patient & Physician Stories & Perspectives in an Era of Novel Treatment Modalities. HF's […]

The Hypersomnia Foundation has CANCELLED our June 2020 Conference. Due to the COVID-19 restrictions and concern for the healthand safety of our community, the Hypersomnia Foundation is canceling our June 2020 Conference in Philadelphia. While there is no doubt this is the right decision, and many have lost much more to this pandemic, it’s still […]

Note:  If you are looking for info on HF's conference in June 2020 for people with idiopathic hypersomnia, narcolepsy & KLS and their supporters (friends, families, and significant others!), please click here: Beyond Sleepy in Philadelphia The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise […]

This event is open to both patients and sleep medicine professionals. Due to the COVID-19 pandemic, this meeting will be virtual. Get the program, keeping in mind that Berlin is in the Central European Time zone. However, the events will be uploaded afterward and available on demand. Register by August 31, 2020.

As part of our mission to raise awareness about IH and related disorders, HF will be attending the American School Health Association’s 2020 virtual conference, where our Medical Advisory Board chair, Dr. Lynn Marie Trotti, will discuss Sleepy Students and Idiopathic Hypersomnia.  Greater awareness of IH by school health professionals means a greater chance that […]

FREE VIRTUAL CONFERENCE! The Society of Anesthesia and Sleep Medicine’s (SASM) 10th Annual Meeting is October 1-2, 2020. This year's theme is “Innovation & Synergism in Sleep, Perioperative Care & Chronic Pain: The Future is Here” and will feature a keynote address from Dr. Jerome Adams, MD, U.S. Surgeon General. Note: If you can't attend […]

The COVID-19 pandemic has left many in the hypersomnia community wondering about the status of clinical trials and research studies—how have they been affected by the lockdowns and safety advisories? Find out the latest answers! Join us on October 24 for a FREE, interactive, 90-minute virtual program, during which hypersomnia experts from both the research […]

Join us on January 30 for a FREE, interactive, 90-minute virtual program, during which you will learn about the emotional aspects of disability and how to choose the right support […]

Introducing the Hypersomnia Foundation’s new “MEET & GREET” series - interactive meetings with members of our community, to give us a chance to talk informally, and let community members meet […]

Join us on May 11 at noon (Eastern) for a FREE virtual event: Diagnosing Hypersomnia Differently—A European Proposal. Did you know? Sleep researchers around the world are working hard to […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the […]

Join us on Thursday, June 17 at 7:00 p.m. (Eastern) for our VIRTUAL MEET & GREET - “Self-Advocacy: Getting Your Best Care.” Turn your cameras on as we talk about […]

Join us Thursday, June 24, 2021 at 12:00-1:30 p.m. (Eastern) for our FREE virtual event "Your Best Self: Getting Your Meds!”- Reducing out of pocket cost for prescription medications and […]

Registration is now open for the upcoming NIH NINDS HEADWAY Health Disparities and Inequities in Neurological Disorders Workshop. The event will be held virtually from September 22nd through 24th from […]

The Society of Anesthesia and Sleep Medicine (SASM) 2021 Virtual Annual Meeting “Sleep Health: The New Vital Sign” Registration is now open for the SASM Annual Meeting on October 7-8, […]

For registration in French, click HERE. The Canadian Sleep Society (CSS) is hosting a virtual conference. In addition to the main scientific program, it will also feature patient engagement sessions […]

Reaching Every Patient: A Health Equity Conversation - An HF VIRTUAL Event Saturday, November 13th 12noon-2pm (EST) Let’s talk about how we can help everyone with a rare sleep disorder […]

Join us on Saturday, January 15, 2022 at 1:00-2:30 p.m. (Eastern)  for our VIRTUAL MEET & GREET - "We're in This Together!" Is it a challenge for you (and your […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. Check out the keynote […]

Join us in Charlotte, North Carolina on June 3 – 5, 2022! Join us in beautiful Charlotte for the Hypersomnia Foundation's #BeyondSleepy Conference 2022 for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin Syndrome and their supporters. After such a long hiatus from meeting in person, we are planning a great mix of speakers covering the latest […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the website https://www.sleepmeeting.org/about/: SLEEP is the annual meeting of the Associated Professional Sleep Societies, LLC (APSS), which is a joint venture of the American Academy of Sleep Medicine (AASM) […]

NOTE: The intended audience for this CME/CE certified symposium is sleep specialists, psychiatrists, neurologists, and advanced-practice clinicians. The Hypersomnia Foundation is partnering with Haymarket Medical Education on a complimentary accredited continuing education dinner symposium, “A New Dawn for Better Outcomes in Patients With Idiopathic Hypersomnia: New Data, New Guidance, New Treatments" being held on Sunday, […]

UNIGHT - Discuss. Share. Connect. Monday, January 30th at 7:00 p.m. (Eastern) Join us on the last Monday of every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various […]

UNIGHT - Discuss. Share. Connect. Monday, February 20th at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living […]