SomnusNooze e-newsletter

Understanding Narcolepsy and Hypersomnia: Insights and Perspectives This free event is open to everyone! HF is collaborating with Wake Up Narcolepsy to hold an Education Day on Saturday, September 21st in Vancouver, B.C. at Sleep Expo 2019:  This one day conference is for people with narcolepsy and/or idiopathic hypersomnia, their families, educators, clinicians and researchers. […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! As part of HF’s new 2019 initiative, we are reaching out to the professionals who are most likely to encounter sleepy people! At this conference, HF will exhibit and network among 5,000 family medicine physicians in […]

The Hypersomnia Foundation is holding a Patient Education Meeting on Saturday, October 19th in Chicago at the Sheraton Suites O'Hare Hotel, from 10:00 a.m. - 3:00 p.m. Tickets are $25 and includes a buffet lunch. Registered event attendees are invited to attend a free Meet & Greet socializing hour planned for Friday, October 18 at […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF is participating in this event and providing a patient panel […]

The Hypersomnia Foundation has CANCELLED our June 2020 Conference. Due to the COVID-19 restrictions and concern for the healthand safety of our community, the Hypersomnia Foundation is canceling our June […]

Note:  If you are looking for info on HF's conference in June 2020 for people with idiopathic hypersomnia, narcolepsy & KLS and their supporters (friends, families, and significant others!), please […]

This event is open to both patients and sleep medicine professionals. Due to the COVID-19 pandemic, this meeting will be virtual. Get the program, keeping in mind that Berlin is […]

As part of our mission to raise awareness about IH and related disorders, HF will be attending the American School Health Association’s 2020 virtual conference, where our Medical Advisory Board […]

FREE VIRTUAL CONFERENCE! The Society of Anesthesia and Sleep Medicine’s (SASM) 10th Annual Meeting is October 1-2, 2020. This year's theme is “Innovation & Synergism in Sleep, Perioperative Care & […]

The COVID-19 pandemic has left many in the hypersomnia community wondering about the status of clinical trials and research studies—how have they been affected by the lockdowns and safety advisories? […]

Join us on January 30 for a FREE, interactive, 90-minute virtual program, during which you will learn about the emotional aspects of disability and how to choose the right support […]

Introducing the Hypersomnia Foundation’s new “MEET & GREET” series - interactive meetings with members of our community, to give us a chance to talk informally, and let community members meet […]

Join us on May 11 at noon (Eastern) for a FREE virtual event: Diagnosing Hypersomnia Differently—A European Proposal. Did you know? Sleep researchers around the world are working hard to […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the […]

Join us on Thursday, June 17 at 7:00 p.m. (Eastern) for our VIRTUAL MEET & GREET - “Self-Advocacy: Getting Your Best Care.” Turn your cameras on as we talk about the challenges of advocating for timely and quality care for idiopathic hypersomnia, narcolepsy and Kleine-Levin syndrome. Following a short panel presentation, we’ll break into chat […]

Join us Thursday, June 24, 2021 at 12:00-1:30 p.m. (Eastern) for our FREE virtual event "Your Best Self: Getting Your Meds!”- Reducing out of pocket cost for prescription medications and appealing insurance denials. In an ideal world, your doctor gives you a prescription for a medication, the pharmacy fills it promptly, and insurance covers all […]

Registration is now open for the upcoming NIH NINDS HEADWAY Health Disparities and Inequities in Neurological Disorders Workshop. The event will be held virtually from September 22nd through 24th from […]

The Society of Anesthesia and Sleep Medicine (SASM) 2021 Virtual Annual Meeting “Sleep Health: The New Vital Sign” Registration is now open for the SASM Annual Meeting on October 7-8, […]

For registration in French, click HERE. The Canadian Sleep Society (CSS) is hosting a virtual conference. In addition to the main scientific program, it will also feature patient engagement sessions […]

Reaching Every Patient: A Health Equity Conversation - An HF VIRTUAL Event Saturday, November 13th 12noon-2pm (EST) Let’s talk about how we can help everyone with a rare sleep disorder get a proper diagnosis and treatment! Many people with rare sleep disorders face diagnosis and treatment delays. Some don’t seem to get a diagnosis at […]

Join us on Saturday, January 15, 2022 at 1:00-2:30 p.m. (Eastern)  for our VIRTUAL MEET & GREET - "We're in This Together!" Is it a challenge for you (and your supporters) to manage life with a sleep disorder? You’re not alone! We invite people with IH, KLS, and narcolepsy AND their supporters to join in […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. Check out the keynote […]

Join us in Charlotte, North Carolina on June 3 – 5, 2022! Join us in beautiful Charlotte for the Hypersomnia Foundation's #BeyondSleepy Conference 2022 for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin Syndrome and their supporters. After such a long hiatus from meeting in person, we are planning a great mix of speakers covering the latest […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the website https://www.sleepmeeting.org/about/: SLEEP is the annual meeting of the Associated Professional Sleep Societies, LLC (APSS), which is a joint venture of the American Academy of Sleep Medicine (AASM) […]

NOTE: The intended audience for this CME/CE certified symposium is sleep specialists, psychiatrists, neurologists, and advanced-practice clinicians. The Hypersomnia Foundation is partnering with Haymarket Medical Education on a complimentary accredited […]