SomnusNooze e-newsletter

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Hypersomnia Foundation’s Catherine Page-Rye will be live on Top Docs Radio, Tuesday April 18 at noon EDT.

1:00-4:30PM – HF Regional Conference at the historic Boston Public Library at Copley Square, 700 Boylston St., Boston, MA 02116 We have booked Rabb Lecture Hall in the newly renovated […]

HF is getting ready to mark Idiopathic Hypersomnia Awareness Week, September 4-10 ! Created by Hypersomnolence Australia, we plan to do our part to help raise awareness during IHAW. Please […]

The Hypersomnia Foundation will have a booth at the Exhibit Hall at the World Sleep Congress meeting in Prague this October! “We believe it is important to take this opportunity […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among nearly 2,000 college health providers […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among more than 5,000 sleep medicine […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among nearly 3,600 school counselors to […]

This Seattle meeting will be one of a series of educational meetings HF will begin holding in 2019 and beyond. We hope that holding one-day meetings in a variety of […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! As part of HF’s new 2019 initiative, we are reaching out […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! The Hypersomnia Foundation has accepted an invitation to work with SBSM […]

Understanding Narcolepsy and Hypersomnia: Insights and Perspectives This free event is open to everyone! HF is collaborating with Wake Up Narcolepsy to hold an Education Day on Saturday, September 21st […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! As part of HF’s new 2019 initiative, we are reaching out […]

The Hypersomnia Foundation is holding a Patient Education Meeting on Saturday, October 19th in Chicago at the Sheraton Suites O'Hare Hotel, from 10:00 a.m. - 3:00 p.m. Tickets are $25 […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF is participating in this event and providing a patient panel […]

The Hypersomnia Foundation has CANCELLED our June 2020 Conference. Due to the COVID-19 restrictions and concern for the healthand safety of our community, the Hypersomnia Foundation is canceling our June […]

Note:  If you are looking for info on HF's conference in June 2020 for people with idiopathic hypersomnia, narcolepsy & KLS and their supporters (friends, families, and significant others!), please […]

This event is open to both patients and sleep medicine professionals. Due to the COVID-19 pandemic, this meeting will be virtual. Get the program, keeping in mind that Berlin is […]

As part of our mission to raise awareness about IH and related disorders, HF will be attending the American School Health Association’s 2020 virtual conference, where our Medical Advisory Board […]

FREE VIRTUAL CONFERENCE! The Society of Anesthesia and Sleep Medicine’s (SASM) 10th Annual Meeting is October 1-2, 2020. This year's theme is “Innovation & Synergism in Sleep, Perioperative Care & […]

The COVID-19 pandemic has left many in the hypersomnia community wondering about the status of clinical trials and research studies—how have they been affected by the lockdowns and safety advisories? […]

Join us on January 30 for a FREE, interactive, 90-minute virtual program, during which you will learn about the emotional aspects of disability and how to choose the right support […]

Introducing the Hypersomnia Foundation’s new “MEET & GREET” series - interactive meetings with members of our community, to give us a chance to talk informally, and let community members meet […]

Join us on May 11 at noon (Eastern) for a FREE virtual event: Diagnosing Hypersomnia Differently—A European Proposal. Did you know? Sleep researchers around the world are working hard to […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the […]

Join us on Thursday, June 17 at 7:00 p.m. (Eastern) for our VIRTUAL MEET & GREET - “Self-Advocacy: Getting Your Best Care.” Turn your cameras on as we talk about […]

Join us Thursday, June 24, 2021 at 12:00-1:30 p.m. (Eastern) for our FREE virtual event "Your Best Self: Getting Your Meds!”- Reducing out of pocket cost for prescription medications and […]

Registration is now open for the upcoming NIH NINDS HEADWAY Health Disparities and Inequities in Neurological Disorders Workshop. The event will be held virtually from September 22nd through 24th from […]

The Society of Anesthesia and Sleep Medicine (SASM) 2021 Virtual Annual Meeting “Sleep Health: The New Vital Sign” Registration is now open for the SASM Annual Meeting on October 7-8, […]

For registration in French, click HERE. The Canadian Sleep Society (CSS) is hosting a virtual conference. In addition to the main scientific program, it will also feature patient engagement sessions […]

Reaching Every Patient: A Health Equity Conversation - An HF VIRTUAL Event Saturday, November 13th 12noon-2pm (EST) Let’s talk about how we can help everyone with a rare sleep disorder get a proper diagnosis and treatment! Many people with rare sleep disorders face diagnosis and treatment delays. Some don’t seem to get a diagnosis at […]

Join us on Saturday, January 15, 2022 at 1:00-2:30 p.m. (Eastern)  for our VIRTUAL MEET & GREET - "We're in This Together!" Is it a challenge for you (and your supporters) to manage life with a sleep disorder? You’re not alone! We invite people with IH, KLS, and narcolepsy AND their supporters to join in […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. Check out the keynote speakers HERE.

Join us in Charlotte, North Carolina on June 3 – 5, 2022! Join us in beautiful Charlotte for the Hypersomnia Foundation's #BeyondSleepy Conference 2022 for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin Syndrome and their supporters. After such a long hiatus from meeting in person, we are planning a great mix of speakers covering the latest […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the website https://www.sleepmeeting.org/about/: SLEEP is the annual meeting of the Associated Professional Sleep Societies, LLC (APSS), which is a joint venture of the American Academy of Sleep Medicine (AASM) […]

NOTE: The intended audience for this CME/CE certified symposium is sleep specialists, psychiatrists, neurologists, and advanced-practice clinicians. The Hypersomnia Foundation is partnering with Haymarket Medical Education on a complimentary accredited continuing education dinner symposium, “A New Dawn for Better Outcomes in Patients With Idiopathic Hypersomnia: New Data, New Guidance, New Treatments" being held on Sunday, […]

UNIGHT - Discuss. Share. Connect. Monday, January 30th at 7:00 p.m. (Eastern) Join us on the last Monday of every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various […]

UNIGHT - Discuss. Share. Connect. Monday, February 20th at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living […]

UNIGHT - Discuss. Share. Connect. Monday, March 27th at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living […]

UNIGHT - Discuss. Share. Connect. Monday, April 24 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with […]

UNIGHT - Discuss. Share. Connect. Monday, May 22 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with […]

Join us in Indianapolis, Indiana from June 2 to 4, 2023 for the Hypersomnia Foundation's 2023 #BeyondSleepy Conference for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome and their supporters. Registration for in-person attendance is $99. Thanks to generous support from our sponsors, virtual registration is free. Presentations will cover the latest in research, treatments, […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the website https://www.sleepmeeting.org/about/: SLEEP is the annual meeting of the Associated Professional Sleep Societies, LLC (APSS), which is a joint venture of the American Academy of Sleep Medicine (AASM) […]

UNIGHT - Discuss. Share. Connect. Monday, June 26 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with […]

UNIGHT - Discuss. Share. Connect. Monday, July 31 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with […]

UNIGHT - Discuss. Share. Connect. Monday, August 28 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with […]

UNIGHT - Discuss. Share. Connect. Monday, September 25 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with […]

UNIGHT - Discuss. Share. Connect. Monday, November 27 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly virtual get together for people with sleep disorders, their family and friends to have an open, casual discussion about various topics related to living with […]

UNIGHT - Discuss. Share. Connect. Monday, December 18 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is Monday, December 18 at 7:00 PM (Eastern) / 4:00 PM (Pacific) with special […]

UNIGHT - Discuss. Share. Connect. Monday, January 29 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is Monday, January 29 at 7:00 PM (Eastern) / 4:00 PM (Pacific) with special […]

UNIGHT - Discuss. Share. Connect. Monday, February 26, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is Monday, February 26th. We will meet via Zoom at 7:00 PM […]

UNIGHT - Discuss. Share. Connect. Monday, March 25, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The March UNIGHT meeting will discuss “Nutritional Considerations for Central Disorders of Hypersomnolence” with special guest […]

UNIGHT - Discuss. Share. Connect. Monday, April 29, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. This month’s UNIGHT discusses “Mental Health in Central Disorders of Hypersomnolence” with special guest Alicia […]

Join us in Houston, Texas from May 31 - June 2, 2024!   REGISTER HERE! Join us in beautiful Houston, Texas for the Hypersomnia Foundation's #BeyondSleepy 2024 Conference for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome and their supporters. We have a wonderful mix of speakers covering the latest in research, treatments, and clinical trials; networking and […]

UNIGHT - Discuss. Share. Connect. Monday, June 24, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join this month’s UNIGHT for a discussion with Maggie G. Lavender, MSN, RN, FNP-C, on […]

UNIGHT - Discuss. Share. Connect. Monday, July 29, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is a discussion on “Using Your Voice For Change” featuring special guest Josh […]

UNIGHT - Discuss. Share. Connect. Monday, August 26, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join us on Monday, August 26 via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for […]