SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Hypersomnia Foundation
Free Resources from the Hypersomnia Foundation!
Need information relating to your IH? Love things that are FREE? Our Hypersomnia Foundation website is full of FREE resources for individuals with IH and related sleep disorders (and their loved ones). Our website offers an “IH Standard... read >
NORD Guide for Making Your Health Insurance Work for You!
Are you satisfied with your health insurance benefits? Or are you pulling your hair out over complicated policy language, undecipherable diagnostic codes, and denials of coverage for your IH treatments? It is difficult enough to have a rare disease such... read >
An (Almost) Excuse for Freaking Out Every Morning
In this Personal Journey story, a 19-year-old woman shares how it really feels to have IH. Her feelings run the gamut – from frustration to anger to fear to depression to sorrow. Even with a diagnosis of IH, she still feels the need to apologize for... read >
In Case You Missed It! – March 2019
Happy March! Did you know that March is Women’s History Month? While you are celebrating all the amazing women throughout history this entire month, don’t forget that there are also lots of other fun (and offbeat) celebrations in March, including... read >
Ask the Doctor: Is IH Genetic? Do IH Symptoms Ever Remit?
Although the Hypersomnia Foundation is not currently accepting new submissions for its Ask the Doctor series, we are working to answer previously submitted questions that are of general interest to our hypersomnia community. Today we have Dr. Ana... read >
How Does GABA Affect Hypersomnia? Part 2 of Our Video Series Explains!
What is GABA? What role does it play in sleep? And is GABA activity increased by something in the cerebrospinal fluid of people with hypersomnia? We are very pleased to present Part 2 of a new two-part series by neuroscientist Amanda Freeman, PhD, of... read >
Can a Controlled 32-hour Bed-rest Protocol Diagnose IH?
Can IH be diagnosed through a controlled 32-hour bed-rest protocol? And, if so, how many hours does someone need to sleep during those 32 hours to be diagnosed with IH? Finally, how accurate is this type of diagnosis? Sleep researchers in France recently... read >
In Case You Missed It! – February 2019
Happy February! This month is full of celebrations – the Lunar New Year (it’s the Year of the Pig), Black History Month, Presidents’ Day, and the sweetest day of all – Valentine’s Day! But since February is also the shortest month, that means... read >
7th International Narcolepsy Symposium Includes IH! (Part 2 of 2)
In December’s SomnusNooze, we featured Part 1 of a 2-part Summary of the research findings presented at the 7th International Symposium on Narcolepsy, which was held earlier this fall in Boston. Prominent sleep medicine researchers and physicians,... read >
See How Our Hypersomnia Patient Registry Has Helped Researchers!
You’ve participated, and NOW THERE ARE RESULTS! Our hypersomnia-specific patient registry, which was established at CoRDS (Coordination for Rare Diseases at Sanford) in 2016 and which has grown to nearly 1,500 participants, has already helped... read >