SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Hypersomnia Foundation
IH Summary Expanded to Include Diagnostic Criteria
It’s often a struggle to describe to others – sometimes even to healthcare providers – the essence of idiopathic hypersomnia. To address this, HF prepared Idiopathic Hypersomnia Standard Characteristics in 2017 and made it available on our... read >
Summary of “Establishing the Objective Sleep Phenotype in Hypersomnolence Disorder [IH] with and without Comorbid Major Depression”
It can be challenging for doctors to distinguish between idiopathic hypersomnia and depression. It is also possible for one patient to have both conditions. Researchers are looking for better ways to tell the difference between the two so doctors may... read >
Announcing Our New Video Webpage
DID YOU KNOW? The Hypersomnia Foundation has been steadily adding to our library of videos (many of them presentations from HF conferences), showcasing researchers, healthcare providers, and people with IH. Now you can easily find them in one place... read >
HF Legislative Advocate Rebecca King Steps Up for Medication Access and Affordability Laws
The Hypersomnia Foundation has named Rebecca King, who is both a person with IH and an HF volunteer, as a Legislative Advocate. In this role, Rebecca will be leading HF efforts to assess the legislative landscape, select the issues and bills with the... read >
In Case You Missed It! – May 2019
In this month’s “In Case You Missed It!”, keep up to date with news we’ve shared with the sleep disorder community via social media this past month. So don’t worry if you’ve missed anything – we’ve got you covered! CHECK OUT... read >
Video Release! Women’s Health and the Effects of Hypersomnias
MAY 2021 IMPORTANT ADDENDUM: This article and its associated video presentation is now outdated. In May 2021, Hypersomnia Foundation released updated content based on this presentation. Please see the following links for updated information:... read >
Excerpts from the “Advice from Campus” Guide
We are pleased to release three uniquely written excerpts from our Advice from Campus guide in the Education Essentials Guidebook. All of these excerpts navigate the student with idiopathic hypersomnia (IH) through some inevitable challenges on a campus.... read >
Ask the Doctor: How Prevalent Is Narcolepsy in Children with ADHD? What Causes Complex Sleep Apnea?
Do children with ADHD have a higher risk for narcolepsy? Could complex sleep apnea be related to problems with the vagus nerve? A medical expert answers! We are delighted to have Dr. Kiran Maski of Harvard Medical School, a renowned expert in pediatric... read >
In Case You Missed It! – April 2019
Keep up to date with all the news we’ve shared with the sleep disorder community in this month’s “In Case You Missed It!” TAKE ACTION by clicking to support NORD’s advocacy. Read about a runner with IH competing in the upcoming Boston Marathon.... read >
Research Studies Need YOU!
Have IH, narcolepsy, or a related sleep disorder? Ever wonder how you can help in the search for better treatments or even a cure? Now is your chance – a number of research studies are currently seeking participants who have IH, narcolepsy, or excessive... read >