SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Hypersomnia Foundation
Share Your Journey | A Two for One Challenge
Until the summer after I graduated from high school, I had seemingly unlimited energy. A typical day for me would be waking at 5:00 am, attending class until 1:30, and then cramming in homework before heading to marching band or track practice. Often... read >
Dr. David Rye Presents at 2013 Narcolepsy Network
Dr. David Rye's 2013 session at the Narcolepsy Network conference entitled: What's in a Name? Understanding the Origins of the Terminologies for the Family of Hypersomnias. A fascinating examination of semantics and the signs and symptoms of... read >
Parallels Between Progressive Rock and Idiopathic Hypersomnia
Katie Gleason does an excellent job sharing how idiopathic hypersomnia feels to her in a featured essay on stereoembersmagazine.com. I was diagnosed with ADHD before idiopathic hypersomnia, but I suspect the hypersomnia only increases the... read >
How Long Does It Take for Sodium Oxybate to Work?
Background According to the Narcolepsy Network, although it affects more than 200,000 people in the U.S., narcolepsy is estimated to be undiagnosed or untreated in 75% of people with the disorder. This lack of recognition leads to delays in effective... read >
Apply for the Jack & Julie Narcolepsy Scholarship!
Are you a high school senior planning to attend a four-year university and have narcolepsy? Considering applying for the Jack & Julie Narcolepsy Scholarship! Are you a high school senior planning to attend a four-year university and have narcolepsy?... read >
Share Your Journey | Drowning in Sleep
One would think that my mother chose one of those underwater birthing experiences or a birth assisted by dolphins when she had me…since I’ve spent my entire life in or under water. Literally? No, figuratively—living in and under water is my... read >
Register to Attend the 2015 HFRC
Let's kindle the flame! Register to attend the conference today. Socrates once said, "Education is the kindling of a flame, not the filling of a vessel." Sitting in school as a young person, you may remember feeling as if your teachers were the vessels... read >
Can Actigraphy Help to Differentiate People with Narcolepsy from People with Idiopathic Hypersomnia?
Why is this study important? Type 1 narcolepsy (T1N) and idiopathic hypersomnia (IH) are both disorders of central hypersomnolence. Even though the International Classification of Sleep Disorders, third edition, includes a finding of 11 hours of sleep... read >
Awareness: The Key to Unlocking the Mystery of IH
Without awareness, we are lost. Before you knew that idiopathic hypersomnia existed, before you connected your symptoms or those of a loved one with an actual neurologic disorder called IH, you had no awareness. Physicians who have not been... read >