SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Hypersomnia Foundation
Share Your Journey | I Will Not Go Gentle into That Night
At what moment does one admit to themselves, family, and the world that they have more than a passing penchant for sleep as well as have cognitive issues? To be sleepy or “getting caught” napping evokes societal stigmas, e.g., “lazy,”... read >
GABA and Histamine Work Together to Control Wakefulness
New research on genetically altered mice helps to untangle the complex interactions of GABA with brain systems necessary for sustaining wakefulness. Histamine Nerve cells (also known as neurons) in a specific part of the brain, called the... read >
Share Your Journey | Why Do I Fool Myself?
Every night as I head to bed, there's this moment of joy and comfort I experience, which I assume most people experience at least every now and again—that feeling after a long day of work or maybe travel, that you will finally get to lie down and get... read >
Antibiotic May Decrease EDS in GABA-Related Hypersomnia
A study of clarithromycin in the treatment of GABA-related hypersomnia indicates that this drug may be effective in some patients with idiopathic hypersomnia (IH), narcolepsy without cataplexy, and subjective hypersomnia. Background The US Food and... read >
Share Your Journey | My Way of Saying That Research on IH Matters
The day a doctor finally took me seriously when I told him about always being tired, oversleeping almost every day, and generally walking through life in a sleepy fog was one of the best days of my life. I wasn't lazy! I wasn't alone! There were other... read >
New Flumazenil Shortage Information Available
We have continued to monitor the flumazenil shortage situation and now have some updates for you. We are offering this to you for information purposes only. To the best of our knowledge, and until now, only one pharmacy in the United States, Pavilion... read >
It’s a Fine Line Between Type 2 Narcolepsy and Idiopathic Hypersomnia… and It’s Getting Even Finer
Researchers have provided more evidence that narcolepsy without cataplexy (Nw/oC ) and idiopathic hypersomnia (IH) without long sleep time (LST) look more alike on testing than do narcolepsy with cataplexy (NwC) and Nw/oC. This research was completed... read >
Emory Team to Receive Grant to More Fully Understand and Release the Parking Brake!
The Hypersomnia Foundation congratulates Dr. David Rye and the team at Emory University on their receipt of a 4-year award for nearly $3 million in total costs from the National Institute of Neurological Disorders and Stroke to study the biologic basis of... read >
HF Report on Delays in Filling Flumazenil Prescriptions
The Hypersomnia Foundation has become aware that Pavilion Pharmacy, a provider of flumazenil cream and sublingual lozenges in the United States, has been unable to fill new or renewing prescriptions for this drug. We have contacted the company owner and... read >
Continuing to Unravel the Genetic Mystery of Narcolepsy
Dr. Toyoda and his colleagues in Japan have described new susceptibility genes — CCR1 and CCR3 — for type 1 narcolepsy. Background Type 1 narcolepsy (also called narcolepsy with cataplexy) is believed to be the result of a combination of genetic and... read >