SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Hypersomnia Foundation
BUNIHPPS – An Online Research Survey for Narcolepsy & IH Patients
https://www.hypersomniafoundation.org/research-study/bunihpps/ Dear IH Community members: A research team at Boston University has developed BUNIHPPS -- a survey research study for patients with narcolepsy and idiopathic hypersomnia. Also called the... read >
A Comparison of Sodium Oxybate in the Treatment of Idiopathic Hypersomnia and Narcolepsy Type 1
Background Sodium oxybate (SXB) is a drug sold as Xyrem in the United States by Jazz Pharmaceuticals, in Europe by UCB Pharma, and in Canada by Valeant Pharmaceuticals. It is approved in the United States in adults for the treatment of excessive daytime... read >
Research Opportunity
Victoria University, Melbourne Australia is commencing a study about the general health and well-being of people within three groups. One group will be those with both narcolepsy and cataplexy. Cataplexy is a sudden loss of muscle tone, often triggered... read >
The HF Welcomes Celia King to the Board of Directors
As we mentioned in our September 22, 2015, issue of SomnusNooze, several people have recently joined the Board of Directors of the Hypersomnia Foundation. Last month, we introduced you to Scot Hulshizer. Today, we would like you to meet Celia King. Ms.... read >
ADHD Symptoms in Children with Narcolepsy
Background Compared with adults with narcolepsy, children with narcolepsy often have higher levels of excessive daytime sleepiness (EDS), are more likely to have cataplexy without a trigger, and are more likely to have a secondary form of narcolepsy. The... read >
Crash Course: Public School Accommodations for Children with Hypersomnia: Part 2
Part 2: Understanding 504 vs. IEP By Kate Pece, MEd In this series of four articles, you will learn how to navigate the public school system for accommodations under a 504 plan. You can read the other parts here: part 1, part 3, and part 4. When it... read >
Does Excessive Daytime Sleepiness Affect Children’s Pedestrian Safety?
Background Each year, approximately 30,000 children are unintentionally killed or injured while walking outside (typically within a half mile of their homes). Many factors—including children’s thinking and reasoning abilities, attention spans,... read >
The Hypersomnia Foundation Welcomes New Board Members
We are pleased to announce that Scot Hulshizer, Celia King, and Diane Powell have recently been elected to the Board of Directors of the Hypersomnia Foundation. In addition to bringing unique strengths as the organization thrives and grows in both scope... read >
Crash Course: Public School Accommodations for Children with Hypersomnia
By Kate Pece, MEd In this series of 4 articles, you will learn how to navigate the public school system for accommodations under a 504 plan. This first article gives a broad overview of initiating the process so that you may get started right... read >
Raising Awareness of the Underpinnings of Hypersomnia
Awareness of disease means different things to different people. One’s awareness takes origin in experiences and goals, both personal and professional. Diversity in awareness therefore comprises our community of people who have hypersomnia, their... read >