SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Hypersomnia Foundation
In Case You Missed It! – December 2019
Happy Holidays! As you enjoy the season with family and friends, we’ll keep you up to date with the news we’ve shared via social media in the latest “In Case You Missed It!” DOUBLE YOUR DONATION BY DEC. 31! Our End-of-Year Fundraising... read >
Help Kick Off Our 2019 LET’S GET #BEYONDSLEEPY Fundraising and IH Awareness Campaign
We are excited to kick off our 2019 “Let’s Get #BeyondSleepy!” fundraising and IH awareness campaign! It’s time to print or make your own “Let’s Get #BeyondSleepy!” sign and help spread awareness of IH and the Hypersomnia Foundation. Grab... read >
Ask the Doctor: Can My Treating Physician Set Up an N-of-1 Trial for Me?
What is an N-of-1 trial? What is involved? Can I set up one with my treating physician? We are very honored to have Chad Ruoff, MD, a distinguished member of our Medical Advisory Board and an Adjunct Clinical Assistant Professor at the Stanford Center for... read >
In Case You Missed It! – October/November 2019
The holiday season is upon us and our schedules quickly fill up! Keep up to date with the news we’ve shared via social media with the sleep disorder community since our last “In Case You Missed It!” So don’t worry if you’ve missed anything –... read >
Ask the Doctor: Delayed Sleep Phase Syndrome or Idiopathic Hypersomnia?
What is delayed sleep phase syndrome (DSPS) and how is it diagnosed? Should it be ruled out before a diagnosis of idiopathic hypersomnia (IH) is made? We are very honored to have Thanh Dang-Vu, MD, PhD, a neurologist at Concordia University in Montreal,... read >
Tools for School, Campus, and Beyond
It’s September, and students of all ages – from K-12 through college and beyond – have begun another year of studies or training. But when IH is part of your life, going to school, being on campus, or learning online or in the field, can be... read >
Sailing and Support on the High Seas
All cruises are enjoyable, but imagine a cruise where your fellow passengers also have IH or a related sleep disorder. And everywhere you look, people understand your sleep disorder and how you’re feeling. Then picture yourself surrounded by... read >
In Case You Missed It! – September 2019
As autumn approaches, our schedules quickly fill up! Keep up to date with the news we’ve shared via social media with the sleep disorder community in this month’s “In Case You Missed It!” So don’t worry if you’ve missed anything – we’ve... read >
Our Struggle for Prescription Drug Coverage – 2019 Survey Results
Did you know? Coverage and cost barriers prevent 40% of people with IH from taking the medication prescribed by the doctor. And almost 72% of people with IH have had their prescribed medications initially denied by their insurance company. Your responses... read >
Self-Advocacy Tips for People with IH and Related Disorders
How can you receive your best care from your healthcare providers? How do you negotiate for accommodations or benefits? We have the answers! The HF is pleased to announce the release of its new patient resource brochure: Self-Advocacy Tips for People with... read >