SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Hypersomnia Foundation
Calcium-Dependent Pathway Helps to Regulate Sleep Duration
Background How do our brains control when we go to sleep and when we wake up? Previous studies have tried to answer this question, but, despite years of research, our understanding of this process is incomplete. Therefore, the goal of this study was to... read >
What Is It Like to Participate in a Clinical Trial?
“I don’t want to do it,” I said to my mom as we entered the elevator. “Let’s just go talk to them,” she replied to my dismay. I didn’t want to be there. I didn’t want to have hypersomnia. I didn’t want to do a clinical trial—it... read >
Connect at the Conference
Building on last year’s successful conference, the Hypersomnia Foundation will once again host a number of prominent clinicians and medical researchers to speak at our meeting in Denver on June 12th! “Beyond Sleepy in the Mile High City” will... read >
This Is IH
Most of my friends know I have idiopathic hypersomnia (IH) – it isn’t a secret. And most have heard me talk about the challenges I face because of this neurological disorder. They know I struggle every day to get out of bed. And I don't mean it takes... read >
Join Us for the 2016 Hypersomnia Foundation Regional Conference: Beyond Sleepy in the Mile High City!
Join the Hypersomnia Foundation for our first regional conference “Beyond Sleepy in the Mile High City,” on Sunday, June 12, 2016, from noon to 5:00 pm MDT at the Embassy Suites Hotel in downtown Denver or via live Internet stream. You spoke and we... read >
National Sleep Awareness Week | March 6-13 | #beyondsleepy
During National Sleep Awareness Week, which begins this coming Monday the Hypersomnia Foundation would like to feature your stories and your experiences as a person with idiopathic hypersomnia. We want to showcase how idiopathic hypersomnia affects... read >
A United Effort to Fuel Research on Hypersomnia
A patient registry specific to hypersomnia has been a goal of the Hypersomnia Foundation (HF) since its incorporation in 2014. A patient registry houses information about a group of people with a medical... read >
Hypersomnia Registry Process | A Rare Disease Day Update
Feel free to share the images below on social media in honor of Rare Disease Day! Right click and save the image to your own computer, and then upload to social media. Cover Photo Social Media Infographic ... read >
Strategies for Coping with the Side Effects of Medications
IMPORTANT NOTE: If you think you may be experiencing side effects from your treatments, be sure to discuss these with your healthcare providers, who can help you consider other treatment options. By TONI BERNHARD, JD Many of us who suffer from... read >
Your Journey Fosters Awareness
There is no greater agony than bearing an untold story inside you—Maya Angelou Your personal story about hypersomnia is a powerful means to raise awareness of a journey with a rare chronic disorder. Although each person’s experiences are unique,... read >