SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Hypersomnia Foundation
Together We WILL Solve the Puzzle of Hypersomnia
Why did the Hypersomnia Foundation Board of Directors and volunteers work for more than two years with physicians and researchers to create a hypersomnia-specific registry? Because, as David Meeker, President and CEO of Genzyme, has said,... read >
Complete the CoRDS Registry to Raise Funds for Research!
Hypersomnia Australia is designating September 5- 11th as Idiopathic Hypersomnia Awareness Week. Their theme this year is Improving Quality of Life. We can’t think of a better way to improve the lives of people with Idiopathic Hypersomnia than to... read >
Ask the Doctor
October 2017 Update: We regret to inform you that the Ask the Doctor column will be suspended until further notice. We are regrouping and intend to re-introduce a new and improved column with guidelines and parameters that will meet the... read >
Service and Therapy Animals – Part 1: Getting Started
We begin this two-part series with a basic overview of the different types of service, emotional support and therapy animals. So, you're thinking about getting, or someone has recommended that you get, a service dog, therapy animal, or emotional... read >
What’s New in the Diagnosis and Treatment of Hypersomnia in 2016?
Rather than writing our own article for this week’s edition of SomnusNooze, we are bringing you information from Dr. David Cunnington in Melbourne, Australia. Dr. Cunnington has agreed to share with us a recent post from his website (sleephub.com.au)... read >
Together, We Can Solve the Puzzle of Hypersomnia
Wouldn't you like to do something to help solve the puzzle of hypersomnia? Well you can! Sharing information about your symptoms, your previous treatments, and your diagnostic journey as part of the Hypersomnia Registry at CoRDS (Coordination of... read >
Flumazenil for the Treatment of Refractory Hypersomnolence
Background In 2012, researchers from Emory University published a paper on their finding of a substance that increases the effect of GABA in people with central disorders of hypersomnolence, particularly idiopathic hypersomnia. In that paper, they... read >
The Blight on My Daughter’s Life
I gave birth to my daughter at 7:28 pm after 33 hours of labor. I was worn out, so I relinquished my baby to the care of the nurses within a couple hours to get some sleep. I didn’t see Cait again till 6:00 am. And, for the first year and a half of her... read >
Hypersomnia Research-Where We Are and Where We Are Headed
During the presentation by David Rye, MD, PhD, titled “What are the latest developments in research on idiopathic hypersomnia?” at the Beyond Sleepy in the Mile-High City Hypersomnia Conference, he pointed out that, while on the one hand without a... read >
Idiopathic Hypersomnia – A Turtle Going Uphill Through Molasses in January
Share the Journey Stories Words escape me. I am a reader, a writer, and a highly educated woman with multiple degrees. Eloquence is high on my list of valued traits. Communication is one of my strengths, and something I’ve always been commended for.... read >