SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Evan Desmarais
HF Announces Task Force to Focus on Diversity, Equity and Inclusion
The Hypersomnia Foundation announced its Diversity, Equity and Inclusion (DEI) Task Force last week on social media. This group of volunteers and HF Board Members are working to understand and identify the challenges people of diverse backgrounds may... read >
Tips for Supporters of People With Hypersomnias
Having idiopathic hypersomnia (IH) or a related sleep disorder can be incredibly stressful for both person(s) who have a hypersomnia (PWH) and their supporters. We’ve just launched a new web page providing Tips for Supporters, which were developed by... read >
Announcing Our New Webpage—Sleeping/Napping in Your Car Safely
Start talking to someone with a hypersomnia about how hard it can be to stay awake all day, and soon enough we’ll be telling stories about napping in our cars. Many of us have our favorite napping spots and strategies. We also have concerns—are we... read >
Ride With the Sleep/Wake Cyclers to Raise Money for Research
The Hypersomnia Foundation community is forming a bike team, the Sleep/Wake Cyclers, to raise money for research on idiopathic hypersomnia and related sleep disorders. Our inaugural ride will be Saturday, June 12, 2021! We need riders! All ages... read >
New Research Published on Cognitive-Behavioral Therapy for Hypersomnias
While cognitive-behavioral therapy (CBT) has been used extensively to treat many disorders, including insomnia, until now little research has been done to develop similar treatments for idiopathic hypersomnia (IH) and narcolepsy. Dr. Jason Ong, a member... read >
Autonomic Dysfunction and Idiopathic Hypersomnia Study Produces Results
A recurring theme we see from people with idiopathic hypersomnia is an interest in finding others who share symptoms beyond sleepiness. This helps connect patients with common experiences and researchers on the path to finding causes and new and improved... read >
Differences in Hypersomnia Disorder Symptoms Among African Americans
Do people of different races/ethnicities experience the same hypersomnia symptoms? This is still an open question, but one study found that African Americans with narcolepsy are less likely to have cataplexy, even when hypocretin levels are low. The... read >
Thinking of Requesting Work Accommodations? Your Mood and Confidence Matter
A summary of a refereed journal article was written at the request of the HF Patient Advisory and Advocacy Council (PAAC) because of its relevance to those with hypersomnias. It highlights some of the issues regarding the complex process of requesting... read >
U.S. Supreme Court Hearing on the Affordable Care Act Scheduled for Nov. 10th
On November 10th, the Supreme Court of the United States will conduct a hearing on a topic of great concern to millions of people with chronic health conditions such as idiopathic hypersomnia and related sleep disorders. The question before the court is... read >
A Call to Action: Racial Disparities in Hypersomnia Disorders
The Hypersomnia Foundation has long felt that welcoming everyone, regardless of ethnicity, gender, religion, or any other demographic, is essential to who we are, and must be incorporated into our efforts to raise awareness and reach undiagnosed patients.... read >