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06.04.2017 | 12:30 – 4:30 EST
The Hypersomnia Foundation invites you to our Regional Conference, “Let’s Get #BeyondSleepy in Boston,” on Sunday June 4th. Join us in the Rabb Lecture Hall of the Boston Public Library, in-person or via livestream, to hear speakers discuss topics focused on this year’s theme: Advocacy & Empowerment. Admission is FREE, but registration is required, so be sure to RSVP today!
Boston Public Library
The conference will be held in the Rabb Lecture Hall of the beautifully renovated Johnson building, adjacent to the main Boston Public Library.
June 4th, 2017
The conference is scheduled from 12:30 – 4:30 PM EST. Doors open for conference attendees at 12:00 Noon. See below for optional social events on June 3rd!
Free Admission
Admission to the conference – whether you are coming to Boston or planning to view the live stream – is FREE, but registration is required!
Advocacy & Empowerment
A sleep physician recently told us that she admires the courage of people with hypersomnia. We do, too. This year’s regional conference focuses on the variety of challenges faced by the hypersomnia community.
- Working: “Staying Ahead of Hypersomnia” will offer sound recommendations for those who are working and perhaps aren’t sure what the future holds.
- Studying: For those navigating school or college – and their parents – our education panel will share what they have experienced as they made decisions about asking for accommodations.
- Supporting Research: We will hear from another sleep registry program about the kinds of information that people with IH can offer that truly helps inform research – the answers may surprise you.
- Living a Fuller Life with IH: Kate Kaplan, a clinical psychologist and sleep researcher at Stanford University, will review ways that therapy can help individuals with hypersomnia manage symptoms and lead active, full lives. Kaplan practices behavioral sleep medicine and works frequently with individuals who have hypersomnia.
- Staying Up to Date: We are proud to announce that Dr. Lynn Marie Trotti will provide an update on current treatment and research topics of interest to people with IH.
“We’re thrilled to bring the hypersomnia community together this spring. We chose the theme of Advocacy and Empowerment because we have seen, again and again, the powerful determination of people with hypersomnia to seek out all available resources. We are bringing together speakers and topics which we hope will support those efforts.”
– Diane Powell
CEO | Chair, Board of Directors
Speakers
We are pleased to announce the following speakers. We will be announcing additional presenters in the coming weeks – watch for our posts on Facebook and Twitter, or check back here!
Anjel Burgess, JD
Staying Ahead
of Hypersomnia
Discussion Panel
Celia King, MPS | Mary King, Ed D | Olivia Robbins | Jessamine Griewahn-Okita
Turning Hope into Success: The Journeys of Two Graduates
Lynn Marie Trotti, MD, MSc
Treatment & Research
Updates
Monica Gow
The Importance of
Participating In a Registry
Schedule
Joining us in person for the conference? We’re offering extra events in Boston for attendees! Check the schedule below for details, and when you register be sure to let us know which you would like to attend!
June 3rd
Old Town Trolley Tour
2:00 – 4:00 PM ET | $25.00
According to our survey, your #1 choice for a Saturday afternoon activity is the Old Town Trolley Tour of historic Boston. Sit back, relax and discover all that Boston has to offer by means of this sightseeing tour! We have booked a trolley just for our conference attendees, and thanks to an anonymous sponsor we are able to lower the price of tickets to just $25.00 each. Pickup will be at 2:00 pm at the Residence Inn Boston Harbor at Tudor Wharf, and will return to the Residence Inn about 4:00 p.m. Space is limited for this great event; please click the link below to purchase tickets!
Meet and Greet Game Night
7:30 PM ET | FREE
Enjoy a casual meet and greet with light snacks and games hosted by the HF Board at the Residence Inn Boston Harbor on Tudor Wharf. The event is FREE to all attendees, but please RSVP – you’ll see that option when you register for the conference.
June 4th
HF Regional Conference
12:30 – 4:30 PM ET | FREE
The conference will be held in the Rabb Lecture Hall of the beautifully renovated Johnson Building, adjacent to the Main Boston Public Library. Light refreshments will be available mid-afternoon.
Be sure to stay connected for updates on speakers, details, and more in the weeks to come!
Registration
Registration is easy! Click one of the links below to register to attend the conference in person or via live-stream, and be sure to check out the schedule for the list of events planned around the conference! Looking to reserve your seat for the Old Trolley Tour?
FREE
In Person
Want to join us in Boston? We’d love to see you there! Check the schedule above for sponsored weekend events! Admission to the conference is free, but registration is required for all events!
FREE
Livestream
Can’t make it to Boston? We’ll be live-streaming the conference! Viewing is free but registration is required. Register today to receive viewing details, and conference announcements in the months to come!
Accommodations
Looking for a hotel? The Hypersomnia Foundation has reserved a block of rooms at The Residence Inn Boston Harbor at Tudor Wharf, on a first-come, first-served basis.
Residence Inn Boston Harbor on Tudor Wharf
Address:
34-44 Charles River Ave.
Boston, MA 02129
Lobby Phone:
1-617-242-9000
For Saturday night, June 3rd, The Residence Inn Boston Harbor on Tudor Wharf has offered the Hypersomnia Foundation a special group rate of $289.00 USD per night (plus tax) for a studio suite. This Residence Inn has generously agreed to offer this same rate for a limited number of rooms for Friday (June 2) and Sunday (June 4) as well.
Hotel & Suite Amenities
- Check-In 4:00 PM
- Check-Out 12:00 PM
- Valet Parking (Fee)
- Garage Parking (Fee)
- Free Breakfast
- Free WiFi Internet
- Pets Friendly
- Indoor Pool
- Fitness Center
- Business Center
- Element Day Spa
- Laundry On-Site
Booking
To make a reservation guests can either call 1-800-331-3131 to the central reservation team (be sure to mention the Hypersomnia Foundation room block) or book online. For specific hotel questions, please contact Dory Noll at the Residence Inn, at 1-617-933-5313 and she will be happy to assist you.
Sponsors
The Hypersomnia Foundation would like to thank the following for their generous sponsorship:
E. Matthew Steinberg, AIF®
Managing Director – Investments
Tel: 215-576-3015
News & Updates
Watch this space for announcements about speakers, topics, and other conference related information! Or follow us on Facebook and Twitter.
04.10.2017 | New
Speaker Added to Lineup
Kate Kaplan of Stanford joins HF’s Regional Conference
The Hypersomnia Foundation is pleased to announce that Kate Kaplan, a clinical psychologist and sleep researcher at Stanford University is joining the list of presenters at HF’s Regional Conference in Boston on June 4th. Kaplan will review ways that therapy can help individuals with hypersomnia manage symptoms and lead active, full lives. Kaplan practices behavioral sleep medicine and works frequently with individuals who have hypersomnia.
05.22.2017 | New
Speaker Added to Lineup
Monica Gow Of Wake Up Narcolepsy Joins HF’s Regional Conference
The Hypersomnia Foundation is pleased to announce that Monica Gow, co-founder and former executive director of Wake Up Narcolepsy is joining the list of presenters at HF’s Regional Conference in Boston on June 4th.
Questions?
Contact Us!
Have questions about the conference or interested in becoming a sponsor? Get in touch for more information: