SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Month: July 2017
Idiopathic Hypersomnia Standard Characteristics
It’s often a struggle to describe to others – sometimes to doctors – the essence of idiopathic hypersomnia. Now, the Hypersomnia Foundation presents Idiopathic Hypersomnia Standard Characteristics. This one-page document, reviewed and approved by... read >
A Letter to My Health Care System About Hypersomnia
BY: Karen Berger – MN-USA NOTE: this is part 2 of a 3 part series. For Part 1, click HERE. For Part 3, click HERE. I have had idiopathic hypersomnia (IH) since I was 15 and was finally diagnosed 11 years ago. Since then I have been doing well on... read >
Share Your Journey
Your Story Matters Everyone has a story to tell that will resonate, educate or motivate. Coming to terms with having a rare, chronic condition can feel like a long and sometimes lonely process. Knowing others have walked a similar road as you,... read >
Arise Clinical Trial
CLINICAL TRIAL ENROLLING PATIENTS WITH IDIOPATHIC HYPERSOMNIA AND NARCOLEPSY TYPE 2 Balance Therapeutics is evaluating an investigational new drug BTD-001, to treat excessive daytime sleepiness in individuals diagnosed with idiopathic hypersomnia... read >
Share Your Journey | Hospital, Surgery, and Hypersomnia
MY PERSONAL JOURNEY: Hospital, Surgery, and Hypersomnia I want to share my story because a recent experience has had a profound impact on me. I am still processing it, and I think it is something anyone with hypersomnia needs to think about. I never... read >