To educate, advocate, and resource so that patients with Hypersomnia can live optimal and fulfilling lives.
OUR CORE BELIEFS
- All hypersomnia patients deserve full and proper treatment.
- Optimal diagnosis and treatment derives from better knowledge.
- All of the causes of Hypersomnia can be discovered and properly treated.
- Through participation we can predict, prevent, and personalize treatment for Hypersomnia.
OUR GOALS & OBJECTIVES
- To increase community and physician awareness of the primary hypersomnia syndromes.
- To provide a source of high quality, timely education for both patients and health care providers regarding hypersomnia.
- To form a community of hypersomnia patients and their loved ones for mutual support.
- To promote much needed research into the causes and treatments of hypersomnia, with a special focus on novel ideas with excellent potential for transforming care of hypersomnia patients .
- To assist in translating new discoveries into improved patient outcomes and quality of life.
FOUNDING BOARD MEMBERS
- Catherine (Cat) Page-Rye
Cat Page-Rye graduated from the University of Illinois with a B.A. After graduating from college she started Page Builders, Inc. with her brother. This custom residential company grew to be a multi-million dollar enterprise for over two decades. As President she was responsible for the finances of businesses projects that often totaled tens of millions of dollars per annum. Her leadership oversaw that projects were legally compliant while still motivating and managing subcontractors so that projects were delivered on time. In 2005, during the housing recession, she went on to create Charles Page Builders, LLC, and this allowed her to focus on high-end residential remodeling projects. Now into the next chapter of her life Cat has retired from her business obligations so that she can pursue volunteerism. Cat has been elected to a leadership position on the board in her local Church. In 2014 she co-founded the Hypersomnia Foundation.
- Catherine (Cate) Murray
Catherine (Cate) Friederich Murray’s professional interest in sleep medicine developed more than 20 years ago when she began working as the coordinator of the Standards of Practice and Research Committees at what is now the American Academy of Sleep Medicine. She subsequently served as the Director of Communications and Research and was the Executive Director of the Restless Legs Syndrome Foundation before launching a medical writing and editing business in 2002. Her personal interest in sleep medicine, and hypersomnia specifically, has been honed over those same 20+ years. Little did she know that her precious five-week-old daughter’s sleeping from 8 PM to noon the next day in 1989 would be a harbinger of a diagnosis of hypersomnia with long sleep time in 2013. When Cate is not crisscrossing the country helping with grandchildren, you can find her at home with her husband, Michael, in Scottsdale, Arizona.
- Jennifer (Jenn) Beard
Jennifer Beard is the President and CEO of Quest Virtual School. She has a substantial breadth and depth of experience in education, has worked in patient advocacy, and as a legal assistant. She is a Certified Master Teacher, gifted educator, educational technologist, & professional development facilitator. She serves on the Vanguard Technology Team and the Teacher Leadership Forum. She is a League of Innovative Teachers member, Discovery Education Network (DEN) STAR, Edmodo Certified Trainer, and Edmodo Support Ambassador. She leads several virtual international educational technology development groups. Throughout her educational career Ms. Beard has been nominated for several prestigious awards including Teacher of the Year, Outstanding Young Educator, and Connected Educator. She was recently selected as one of 200 teachers nationwide to participate in a fireside chat with The Bill & Melinda Gates Foundation. She has facilitated several educational technology conference sessions across the state. The Hypersomnia Foundation is an important cause to Ms. Beard as one of her loved ones suffers from Idiopathic Hypersomnia. Ms. Beard has first-hand experience in what this disease can do to family relationships and how it effects people suffering with the disease. Ms. Beard uses her passion for teaching and learning to help raise awareness about Hypersomnia and leverages the power of technology to help The Hypersomnia Foundation magnify their impact.
SCIENTIFIC ADVISORY BOARD
Andrew Jenkins, PhD. Dr Jenkins is an Associate Professor of Anesthesiology at and Assistant Professor of Pharmacology at Emory University who studies drugs and chemicals that induce sleep, and inhibit brain function. He has identified several new drug-binding sites in the brain and is currently investigating how inhibitory ion-channels control the function of brain cells. Andrew received his doctorate in Biophysics from Imperial College, London.
David Rye, MD., PhD. Dr. Rye is a Professor of Neurology at Emory University and specializes in hypersomnia, narcolepsy, restless leg syndrome and other sleep disorders. He graduated from University of Chicago School of Medicine. He and his team discovered the trypsin-sensitive substance in the brain that stimulates GABA receptors and induces sleep.
MEDICAL ADVISORY BOARD
Lynn Marie Trotti, MD, MSc. Dr. Trotti is an Assistant Professor of Neurology at Emory University who specializes in idiopathic hypersomnia, narcolepsy, and other sleep disorders. She has recently completed two clinical trials of novel medications for hypersomnia, and continues to investigate causes underlying excessive sleepiness and related symptoms.